Rare Disease Specialist

Abeona Therapeutics Inc. • Cleveland, OH

8d • $175,000 - $200,000

About The Position

Abeona Therapeutics is seeking a highly motivated, collaborative Rare Disease Specialist in its Strategic Accounts department. The role supports identification and referral of patients living with Recessive Dystrophic Epidermolysis Bullosa (RDEB). As a strategic field partner, the specialist engages healthcare providers, Centers of Excellence (COEs), referral institutions, and other stakeholders to increase disease awareness, facilitate patient identification, and strengthen referral pathways.

The specialist develops and executes territory account plans to support appropriate referrals to Qualified Treatment Centers (QTCs). The role works with healthcare professionals and institutional stakeholders across the RDEB care continuum and collaborates with internal cross-functional partners to support commercial objectives and improve the patient journey. It is suited to a strategic, relationship-focused professional comfortable in complex healthcare environments and motivated to make an impact in the rare disease community.

The general schedule is Monday through Friday, 9:00 a.m. to 5:00 p.m.; start and end times may vary, and occasional late or weekend work may be required. Travel is approximately 50–70%, including overnight travel and conference attendance.

Requirements

• Bachelor's degree in Life Sciences, Healthcare, Business, or a related field.
• At least 5 years of biotechnology, pharmaceutical, specialty therapeutics, or healthcare experience.
• Demonstrated success in account management, strategic sales, market development, provider relations, or healthcare stakeholder engagement.
• Experience working with complex healthcare systems, academic institutions, and multidisciplinary provider networks.
• Ability to build trusted relationships with healthcare professionals and institutional stakeholders.
• Strong business planning, communication, and presentation skills.
• Exceptional interpersonal skills and a collaborative, customer-focused approach.
• Ability to analyze territory opportunities and develop strategic action plans.
• Strong organizational skills and ability to manage multiple priorities effectively.
• Working knowledge of applicable regulatory, legal, and compliance requirements.
• Ability to travel approximately 50–70%, including overnight travel and conference travel.
• Applicants must be authorized to work for any employer in the United States; visa sponsorship is not available.
• The role is not suitable for candidates whose work authorization is temporary and based on optional practical training (OPT).

Nice To Haves

• Experience in rare disease, dermatology, specialty biologics, genetic disease, or gene therapy is strongly preferred.

Responsibilities

• Develop and execute strategic territory account plans focused on patient identification, referral pathway development, and stakeholder engagement.
• Establish and maintain relationships with dermatologists, pediatric dermatologists, pediatricians, geneticists, wound care specialists, nurse coordinators, and other healthcare professionals involved in RDEB care.
• Identify opportunities to increase RDEB awareness and facilitate recognition of appropriate patients for treatment evaluation.
• Engage Centers of Excellence, referral institutions, and community providers to strengthen referral networks and improve patient access to Qualified Treatment Centers.
• Work with healthcare providers to understand referral processes and identify opportunities to improve patient flow and coordination.
• Maintain a deep understanding of the RDEB patient journey and the healthcare ecosystem supporting patients and caregivers.
• Analyze territory opportunities and develop action plans to maximize stakeholder engagement and referral activity.
• Maintain accurate account profiles, territory plans, and engagement records.
• Deliver compliant educational presentations to healthcare professionals and institutional stakeholders.
• Support local and regional educational programs that increase disease awareness and improve patient identification.
• Build collaborative relationships with key opinion leaders and influential stakeholders within the EB community.
• Facilitate discussions about referral pathways and patient access considerations.
• Gather customer insights and market feedback to inform commercial strategy and identify emerging opportunities.
• Partner with Strategic Accounts, Medical Affairs, and Commercial colleagues to coordinate customer engagement.
• Communicate account insights, referral trends, and stakeholder needs to internal teams.
• Participate in strategic business planning and territory review discussions.
• Collaborate on initiatives supporting patient identification and referral objectives.
• Represent Abeona at regional and national medical, scientific, and industry conferences.
• Support stakeholder engagement activities associated with congresses and meetings.
• Identify opportunities for educational programs and thought-leader engagement within the territory.
• Use conference insights to enhance territory planning and stakeholder engagement strategies.

Benefits

• Annual incentive compensation bonus
• Equity opportunities
• Robust health coverage options
• FSA/HSA options
• Company-paid basic dental and vision plans
• Lifestyle spending account with wellness reimbursements
• 401(k) retirement plan
• Up to 160 hours of paid time off accrual per calendar year, prorated based on hire date

What This Job Offers

• Job Type: Full-time
• Career Level: Mid Level