Director, Patient Services, Rare Neuromuscular Disorders
About The Position
The Director, Patient Services, Rare Neuromuscular Disorders facilitates patient access through expertise in coverage, payer policies, and patient support ecosystems. The role owns the relationship and operational accountability for ITF’s patient support services and specialty pharmacy fulfillment. The Director leads the strategic design, business rules optimization, and daily operational execution of the ITF ARC (Access, Resources, and Care) program, supporting a high-touch patient, caregiver, and provider journey for DUVYZAT™ (givinostat). The role also manages a specialized in-home lab monitoring program.
Requirements
- Bachelor’s degree required.
- Minimum of 8–10 years of experience in the pharmaceutical, biotechnology, or life sciences industry.
- Deep practical expertise in specialty drug distribution, specialty pharmacy operations, and third-party patient service (Hub) frameworks.
- At least 3–5 years of success managing high-touch, lower-volume patient support models in rare disease or orphan drug settings.
- Proven experience directly managing an external third-party vendor relationship.
- Foundational understanding of HIPAA data privacy regulations and OIG guidelines governing patient support services and interaction with patient communities.
Nice To Haves
- Advanced degree preferred.
- Direct experience managing an exclusive or “all-in” combined Hub/SP partner model highly preferred.
- Experience overseeing clinical nursing networks, field health educators, or in-home diagnostic/lab monitoring programs is highly advantageous.
Responsibilities
- Serve as primary relationship manager and strategic point of contact for the exclusive combined Hub/Specialty Pharmacy partner.
- Manage day-to-day partner operations, ensure vendor accountability, and optimize time-to-first-fill, conversion, and persistency metrics.
- Maintain and update hub business rules, communication workflows, and standard operating procedures.
- Refine the ITF ARC program framework to address commercial and government access barriers and minimize patient drop-offs.
- Direct the third-party partner responsible for the in-home lab monitoring program.
- Ensure seamless lab monitoring operations, data aggregation, and compliant reporting to prescribing healthcare providers and ITF.
- Maintain and enhance data exchange and analytics pipelines with the Hub/SP and ancillary vendors.
- Analyze patient funnel metrics, daily data feeds, operational KPIs, and adherence trends and provide actionable insights to leadership.
- Partner with Field Reimbursement Managers and national accounts teams on personalized issue resolution, complex appeals, and localized access challenges.
- Coordinate with Marketing, Sales, Patient Advocacy, Medical Affairs, and Legal.
- Oversee compliance, eligibility, and execution of commercial co-pay assistance, QuickStart/bridge programs, and Patient Assistance Programs.
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What This Job Offers
Job Type
Full-time
Career Level
Director
