Patient Support Specialist - Bilingual (West Coast Candidates)

PTC Therapeutics, Inc. • Remote (United States), NV

4d • $97,100 - $122,200

About The Position

PTC Therapeutics is hiring a bilingual Patient Support Specialist to support rare disease patients, including people with PKU, and their caregivers through focused case management. The role supports pediatric patients and caregivers as well as adults enrolled in PTC Cares. It coordinates therapy initiation and patient-level logistics with Sales, Patient Engagement, and Case Manager teams; promotes long-term treatment adherence; and helps patients navigate life-stage transitions, such as moving from childhood to adolescence or transitioning to adult care.

The specialist provides education and coaching using approved materials and channels, but does not provide medical advice. The position also serves as a PKU subject matter resource for Patient Services staff, contributing to consistent, high-quality patient support. The role is expected to follow applicable regulatory and compliance requirements, HIPAA/privacy requirements, program standards, and company SOPs.

The position is intended for candidates located on the U.S. West Coast in the Pacific Time Zone and requires up to 30% travel. The expected base salary range is $97,100–$122,200, with the offer depending on education, background, experience, and internal equity. Eligible employees may receive short- and long-term incentives and may enroll in medical, dental, vision, and retirement savings plans.

Requirements

• Bachelor’s degree.
• At least 5 years of clinical nutrition, nursing, and/or patient counseling experience, with demonstrated adherence and behavior-change support skills.
• Bilingual ability aligned with patient population needs.
• Experience in PKU and/or inherited metabolic disorders across pediatric and adult populations.
• Ability to drive sustained adherence through individualized coaching and barrier resolution.
• Strong patient education, motivational interviewing, and coaching skills, including delivery by video and telephone.
• Strong interpersonal and communication skills for interacting with patients, families, and healthcare providers.
• High proficiency in patient logistics and therapy-adherence tracking.
• High-quality documentation, organization, and follow-through.
• Analytical thinking, problem-solving ability, and adaptability to changing priorities and deadlines.
• Understanding of the pharmaceutical delivery process and ability to work compliantly and appropriately within the industry.
• Planning, organization, and time-management skills, including prioritization across multiple projects.
• Proficiency with Microsoft Office.
• Ability to work independently and collaboratively in a fast-paced, matrixed environment with internal and external team members.

Nice To Haves

• Active dietitian and/or nursing license.
• Master’s degree.
• Metabolic dietitian, pediatric dietitian, and/or nursing expertise with practical application across life stages.
• Experience in rare disease patient services, hub services, specialty pharmacy, or patient support programs.
• Familiarity with EMR/CRM documentation and metric-driven patient outreach.
• Specialized knowledge, skills, licenses, or certificates.

Responsibilities

• Educate patients and caregivers about disease state, medication safety, administration, and storage using phone, video, and other approved channels.
• Coordinate therapy initiation and ongoing patient support with Sales, Patient Engagement, and Case Manager teams, aligning on patient-level logistics and supporting a seamless PTC Cares experience.
• Use available resources to empower patients and improve treatment compliance.
• Identify and address adherence barriers, including diet fatigue, taste preferences, social pressure, school or work constraints, access challenges, and psychosocial factors.
• Provide proactive follow-up based on program triggers, risk, missed check-ins, and patient-reported concerns.
• Support transition milestones, including adolescent independence, transition to adult care teams, and major life events that may affect dietary adherence.
• Coordinate with caregivers and healthcare providers, as appropriate and permitted, to reinforce plans and continuity of care.
• Escalate urgent concerns, clinical red flags, and safety issues according to program guidance and reporting procedures.
• Serve as a PKU resource for Patient Services staff by answering questions, supporting complex cases, and coaching on patient communication approaches.
• Contribute to the development and refinement of PKU-specific workflows, scripts, and patient education tools.
• Share themes and insights with leadership to help improve services and patient experience.
• Document patient interactions accurately and promptly in approved systems.
• Maintain compliance with HIPAA/privacy requirements and PTC Cares program standards.
• Participate in quality improvement initiatives and support program-defined adherence and outcome tracking.

Benefits

• Short- and long-term incentives for eligible employees.
• Medical plan enrollment for eligible employees.
• Dental plan enrollment for eligible employees.
• Vision plan enrollment for eligible employees.
• Retirement savings plans for eligible employees.

What This Job Offers

• Job Type: Full-time