Patient Education Manager, RERT NF1 PN/HPP, South Atlantic (NC, SC, VA, TN)

Alexion•Nashville, TN

About The Position

The NF1 PN and HPP Patient Education Manager (PEM) serves as an empathetic, trusted educational resource for patients and families. The role engages local NF1 and HPP patient communities through one-to-one meetings, delivers unbranded and branded patient education through programs, and partners closely with Alexion’s Patient Advocacy team and local and regional advocacy groups to increase awareness of disease burden, progression, and treatment. PEMs also refer patients and caregivers to Case Managers for support when starting Alexion therapy and connect the community with local advocacy networks and approved resources throughout the treatment journey. The PEM develops a regional patient engagement plan with Patient Advocacy and NF1 PN and HPP brand marketing, coordinates compliant local outreach with cross-functional teams, and educates patients, caregivers, families, and healthcare offices. The role delivers in-person and virtual education, builds a regional network of advocates through local events, and tracks and communicates progress against data-driven performance objectives. The territory may cover North Carolina, South Carolina, Virginia, and Tennessee, with travel of 60–80% of the time, including evenings and weekends.

Requirements

At least 4 years of business experience in the healthcare industry.
Experience engaging with patients and caregivers with rare or chronic conditions.
Empathy and the ability to listen well, connect meaningfully, and present complex information clearly and engagingly in one-to-one meetings.
High initiative, solid work ethic, and consistent accountability.
Ability to adapt quickly and respond positively to frequent change in a high-energy, fast-paced environment.
Excellent presentation skills for diverse stakeholders and settings, including groups of 150 or more people.
Strong organizational capabilities to manage a large territory strategically and efficiently.
Ability to travel 60–80% of the time, including evenings and weekends, and willingness to attend in-person impromptu trainings, educational programs, and business meetings as necessary.
Valid driver’s license and clean driving record.
BA/BS degree required.

Nice To Haves

Advanced degree.
At least 3 years of field-based experience in account management, patient education, or sales.
Experience assisting patients or caregivers.
Background in advocacy, nursing, rare disease support, or social work.
Understanding of community engagement groups and nonprofit organizations.
Understanding of managed care and self-administered products.
Familiarity with relevant legal and regulatory components of the pharmaceutical and biotech industries; rare-disease-specific knowledge is a plus.
Knowledge of oncologic, neurologic, or rare disease conditions.
Fluency in reading and speaking Spanish.

Responsibilities

Develop a regional patient engagement plan in partnership with Alexion Patient Advocacy and NF1 PN and HPP brand marketing to support commercial priorities.
Coordinate with cross-functional partners, including Compliance, Legal, Marketing, Market Access, Medical, Patient Advocacy, and Patient Services, to execute local patient outreach compliantly and effectively.
Educate patients, caregivers, and families in one-to-one meetings, including face-to-face interactions, about NF1 and HPP, NF1 PN and HPP treatment, and Alexion patient support programs.
Conduct impactful in-person or virtual educational events to deliver disease and product information at scale when possible.
Partner with RAMS to educate offices about the PEM role and OneSource through live and virtual in-services.
Build a network of NF1 PN and HPP advocates by participating in local advocacy events, identifying educational needs, raising disease awareness, and promoting patient empowerment.
Refer patients and caregivers to Case Managers for case management support when starting Alexion therapy.
Connect the NF1 and HPP community, as appropriate, with local advocacy networks and approved resources.
Deliver against data-driven performance objectives and track and communicate year-to-date progress to cross-functional partners and Alexion leadership.
Travel 60–80% of the time, including evenings and weekends, and attend in-person impromptu trainings, educational programs, and business meetings as necessary.