About The Position

The NF1 PN and HPP Patient Education Manager (PEM) serves as an empathetic, trusted educational resource for patients and families. The role engages local NF1 and HPP communities through one-to-one meetings, scaled branded and unbranded education programs, and collaboration with Alexion’s Patient Advocacy team and local and regional advocacy groups to raise awareness of disease burden, progression, and treatment. The PEM also refers patients and caregivers to Case Managers for support when starting Alexion therapy and connects the community with local advocacy networks and approved resources throughout the treatment journey. The position develops and executes a regional patient engagement plan with Patient Advocacy and brand marketing partners, coordinates compliant local outreach across functions, and educates patients, caregivers, families, and offices about disease states, treatments, and patient support programs. The PEM participates in advocacy events, delivers in-person and virtual education, and tracks performance objectives and progress for cross-functional partners and leadership. The territory may include AZ, UT, OR, WA, ID, WY, MT, ND, and SD, and requires travel 60–80% of the time, including evenings and weekends.

Requirements

  • At least 4 years of business experience in the healthcare industry.
  • Experience engaging with patients and caregivers with rare or chronic conditions.
  • Empathy and proven ability to listen well, connect meaningfully, and present complex information clearly and engagingly in one-to-one meetings.
  • High initiative, a solid work ethic, and consistent accountability.
  • Ability to adapt quickly and respond positively to frequent change in a high-energy, fast-paced environment.
  • Excellent presentation skills with diverse stakeholders in varied settings, including groups of 150 or more.
  • Strong organizational capabilities to manage a large territory strategically and efficiently.
  • Ability to travel 60–80% of the time, including evenings and weekends, and willingness to attend in-person impromptu trainings, educational programs, and business meetings as necessary.
  • Valid driver’s license and clean driving record.
  • BA/BS degree.

Nice To Haves

  • At least 3 years of field-based experience in account management, patient education, or sales.
  • Experience assisting patients or caregivers.
  • Background in advocacy, nursing, rare disease support, or social work.
  • Understanding of community engagement groups and nonprofit organizations.
  • Understanding of managed care and self-administered products.
  • Familiarity with relevant legal and regulatory components of the pharmaceutical and biotech industries; rare disease-specific knowledge is a plus.
  • Knowledge of oncologic, neurologic, or rare disease conditions.
  • Fluent Spanish reading and speaking ability.

Responsibilities

  • Develop a regional patient engagement plan with Alexion Patient Advocacy and NF1 PN and HPP brand marketing that strategically supports commercial priorities.
  • Coordinate with cross-functional partners, including Compliance, Legal, Marketing, Market Access, Medical, Patient Advocacy, and Patient Services, to execute local patient outreach compliantly and effectively.
  • Educate patients, caregivers, and families through one-to-one meetings, including face-to-face interactions, about NF1 and HPP disease states, NF1 PN and HPP treatments, and Alexion patient support programs.
  • Conduct impactful in-person or virtual educational events to deliver disease and product information at scale when possible.
  • Partner with RAMS to educate offices about the PEM role and OneSource through live and virtual in-services.
  • Build a rare disease network of NF1 PN and HPP advocates by participating in local advocacy events, identifying educational needs, raising disease awareness, and promoting patient empowerment.
  • Refer patients and caregivers to Case Managers for case management support when starting Alexion therapy.
  • Connect the NF1 and HPP community, as appropriate, with local advocacy networks and approved resources.
  • Deliver data-driven performance objectives and track and communicate year-to-date progress to cross-functional partners and Alexion leadership.

Benefits

  • Eligibility for short-term incentive bonuses.
  • Equity-based awards for salaried roles and commissions for sales roles.
  • Qualified retirement programs.
  • Paid time off, including vacation, holidays, and leaves.
  • Health coverage.
  • Dental coverage.
  • Vision coverage.
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