Patient Education Manager, RERT NF1 PN/HPP, North Central (IL, IN. MN, WI, IA)

Alexion•Chicago, IL

About The Position

The NF1 PN and HPP Patient Education Manager (PEM) serves as an empathetic, trusted educational resource for patients and families. The role engages local NF1 and HPP communities through one-to-one meetings, delivers branded and unbranded patient education programs, and partners closely with Alexion’s Patient Advocacy team and local and regional advocacy groups to raise awareness of disease burden, progression, and treatment. The PEM also refers patients and caregivers to Case Managers for support when starting Alexion therapy and connects community members with local advocacy networks and approved resources throughout the treatment journey. The position develops and executes a regional patient engagement plan in partnership with Patient Advocacy and brand marketing, coordinates compliant outreach with cross-functional teams, educates patients and caregivers, and delivers in-person or virtual educational events. The PEM also works with RAMS to educate offices about the PEM role and OneSource, builds a network of NF1 PN and HPP advocates, and tracks and communicates progress toward data-driven performance objectives. The territory may cover Illinois, Indiana, Minnesota, Wisconsin, and Iowa. Travel is 60–80% of the time, including evenings and weekends.

Requirements

At least 4 years of business experience in the healthcare industry.
Experience engaging with patients and caregivers with rare or chronic conditions.
Empathy and the ability to listen well, connect meaningfully, and present complex information clearly and engagingly in one-to-one meetings.
High initiative, a solid work ethic, and consistent accountability.
Ability to adapt quickly and respond positively to frequent change in a high-energy, fast-paced environment.
Excellent presentation skills for diverse stakeholders and settings, including groups of 150 or more people.
Strong organizational capabilities for strategic and efficient territory management across a large geography.
Ability to travel 60–80% of the time, including evenings and weekends, and willingness to attend in-person impromptu trainings, educational programs, and business meetings as necessary.
Valid driver’s license and clean driving record.
BA/BS degree required.

Nice To Haves

Advanced degree.
At least 3 years of field-based experience in account management, patient education, or sales.
Experience assisting patients or caregivers.
Background in advocacy, nursing, rare disease support, or social work.
Understanding of community engagement groups and nonprofit organizations.
Understanding of managed care and self-administered products.
Familiarity with relevant legal and regulatory components of the pharmaceutical and biotech industries; rare-disease-specific knowledge is a plus.
Knowledge of oncologic, neurologic, or rare disease conditions.
Fluency in reading and speaking Spanish.

Responsibilities

Develop a regional patient engagement plan in partnership with Alexion Patient Advocacy and NF1 PN and HPP brand marketing to support commercial priorities.
Coordinate with cross-functional partners—including Compliance, Legal, Marketing, Market Access, Medical, Patient Advocacy, and Patient Services—to execute local patient outreach compliantly and effectively.
Educate patients, caregivers, and families in one-to-one meetings, including face-to-face interactions, about NF1 and HPP disease states, NF1 PN and HPP treatments, and Alexion patient support programs.
Conduct in-person or virtual educational events to deliver disease and product information at scale.
Partner with RAMS to educate offices about the PEM role and OneSource through live and virtual in-services.
Build a network of NF1 PN and HPP advocates by participating in local advocacy events, identifying educational needs, raising disease awareness, and promoting patient empowerment.
Refer patients and caregivers to Case Managers for case management support when starting Alexion therapy.
Connect the NF1 and HPP community, as appropriate, with local advocacy networks and approved resources.
Meet data-driven performance objectives and track and communicate year-to-date progress to cross-functional partners and Alexion leadership.
Travel throughout the assigned territory, including evenings and weekends, and attend in-person impromptu trainings, educational programs, and business meetings as necessary.