Epilepsy Coordinator (Neurology)

The Nemours Foundation•Orlando, FL

5d•Onsite

About The Position

Nemours is seeking a full-time Epilepsy Program Coordinator to join its team in Orlando, Florida. This role coordinates specialized nursing care for patients with complex epilepsy and their families across the epilepsy monitoring unit (EMU) and outpatient settings. The coordinator works with neurologists, advanced practice providers, neurosurgeons, surgical epileptologists, and other medical and nursing staff, with a focus on patient workflow to the EMU and epilepsy surgery. The position plays a critical role in building the epilepsy program and promotes patient- and family-centered care, shared governance, Nemours standards of behavior and values, regulatory compliance, and patient safety. The coordinator develops, organizes, and supervises support and educational programs and disease-specific clinics within neurosciences. Responsibilities include patient and family communication, care coordination, clinic and testing schedules, pre-surgical workups, inpatient rounds, discharge follow-up, research support, and quality improvement. The role serves patients of all ages, from neonates through adults, and supports ongoing assessment and revision of interdisciplinary plans of care.

Requirements

Bachelor’s degree in Nursing.
Minimum three years of experience.
American Heart Association BLS certification.
State of Florida RN license or compact RN license.
EMU Care Certification required within one year of the start date.
Excellent time management skills, proactive approach, ability to work well in a team, and interest in neurology patient care and coordination.
Ability to provide proficient care to neonates, pediatric patients, adolescents, and adults.

Nice To Haves

Master’s degree.

Responsibilities

Coordinate care for patients with complex epilepsy followed by neurologists and advanced practice providers, providing direct and indirect care in collaboration with medical and nursing staff in the EMU and outpatient settings.
Coordinate patient workflow to the EMU and epilepsy surgery, including clinic visits and pre-operative studies in collaboration with neurosurgeons and surgical epileptologists.
Schedule pre-surgical tests, including MRI, PET, SPECT, WADA, and functional MRI, as needed.
Track patients undergoing pre-surgical workups and epilepsy surgery, including their tests and follow-up appointments.
Schedule epilepsy surgery conferences.
Participate in inpatient rounds for EMU phase 1 and phase 2 patients and surgical patients, and coordinate outpatient follow-up and discharge follow-up with physicians and advanced practice providers.
Assess and evaluate patient progress and revise interdisciplinary plans of care based on patient needs.
Identify patient and family resource needs and initiate appropriate teaching or referrals.
Respond to patient phone calls and portal messages, address scheduling questions, and coordinate letters and communication of imaging findings after discussion with providers.
Explain treatment regimens, pre-procedure instructions, and admission processes to patients and families after discussion with physicians or advanced practice providers.
Act as a liaison between patients, families, and members of the health care team, and share subspecialty clinical knowledge collaboratively with the team.
Develop standards of care, educational materials, and programs for the specialty patient population.
Participate in the intractable epilepsy and epilepsy surgical clinics.
Participate in research protocols and data collection, including data entry as needed, and collect data for the USNWR report.
Participate in departmental and hospital quality and process assessment and improvement programs; identify improvement opportunities, make recommendations, and implement appropriate actions.
Maintain compliance with regulatory requirements and patient safety practices for the designated location or department.
Promote patient- and family-centered care, the Nemours nursing shared governance model, and Nemours standards of behavior and values through positive role modeling.
Recognize personal learning needs and pursue continued professional development.
Perform other duties as assigned.