SCD Community Engagement & Administration Spe

American Society Of Hematology•Washington, DC

About The Position

The SCD Community Engagement & Administration Specialist supports the ASH Research Collaborative (ASH RC) Sickle Cell Disease (SCD) Community Engagement Program and provides administrative coordination for designated ASH RC staff. The position focuses on meaningful engagement with people living with SCD, their families, Community Advisory Boards (CABs), clinical research sites, and other stakeholders. The Specialist serves as a collaborative, responsive resource to ASH RC staff and external partners in support of program goals and strategic priorities. The role coordinates community engagement projects and activities from planning through completion, supports CAB operations and meetings, helps develop and disseminate community-facing resources, and provides project coordination for grant-funded initiatives and strategic research projects. It also maintains stakeholder and activity records, prepares drafts of routine communications and materials, and collaborates across ASH and ASH RC teams. Administrative duties include calendar and meeting coordination, virtual meeting support, travel arrangements, document preparation and routing, contract-system maintenance, and general office and team support. Occasional support for ASH-sponsored meetings and events outside normal business hours, including evenings and weekends, is required.

Requirements

Bachelor's degree required.
Minimum of three years of relevant professional experience in public health, advocacy, community engagement, clinical research, health care, or a related field preferred.
Strong interpersonal, written, and verbal communication skills, with the ability to communicate effectively and respectfully with diverse audiences.
Demonstrated cultural humility and commitment to working effectively with marginalized and underserved populations.
Excellent organizational, coordination, and follow-through skills, strong attention to detail, and ability to manage multiple priorities.
Strong customer service orientation, professionalism, discretion, and sound judgment.
Ability and willingness to perform administrative functions in support of program coordination and implementation.
Proficiency with Microsoft Office applications, including Word, Excel, PowerPoint, and Outlook.
Ability to handle protected health information appropriately, accessing, using, and disclosing only the minimum necessary information to perform assigned responsibilities.
Ability to communicate clearly and listen actively.
Ability to use computers, telephones, and other standard office equipment.
Ability to travel periodically outside the local area.

Nice To Haves

Advanced degree preferred.
Experience supporting community engagement initiatives, patient advocacy programs, research programs, advisory groups, or committees is strongly preferred.
Knowledge of sickle cell disease and the individual, cultural, and societal factors affecting people living with SCD is preferred.
Experience with Salesforce or another customer relationship management system is a plus.

Responsibilities

Support implementation and advancement of the ASH RC SCD Community Engagement Program in alignment with strategic priorities.
Coordinate assigned program areas and projects from planning through completion, tracking timelines, deliverables, follow-up, deadlines, and potential risks, and escalating issues requiring higher-level decisions to the Senior Manager.
Develop and maintain workflows, templates, trackers, and other tools to improve consistency and efficiency across the Community Engagement Program.
Support SCD Coalition and ASH Center for SCD Initiatives activities related to clinical trials, research issues, and patient and community engagement.
Coordinate logistics and communications for National CAB, local CAB, Council Sites, research site, committee, working group, and other community engagement meetings and events, both virtual and in person.
Prepare meeting agendas, materials, participant communications, minutes, summaries, and follow-up action items; maintain rosters and related documentation.
Support local CAB coordinators with onboarding, orientation, tracking, follow-up, and routine operational guidance; identify recurring needs and recommend improvements to the Senior Manager.
Support monthly National CAB operational planning with the Senior Manager, including scheduling, speaker coordination, materials, deck preparation, attendance, meeting technology, notes, action items, and follow-up.
Assist with planning and facilitating focus groups, listening sessions, community discussions, and other engagement activities, including participant communication, materials, logistics, documentation, and follow-up.
Support development, review, and dissemination of plain-language, culturally responsive materials and program resources, including the CAB Program Toolkit, coordinator trainings, engagement tools, and branded resources.
Support community-facing outreach, marketing, and tabling at SCD awareness days, community recognition events, priority meetings, and other patient engagement activities, including materials, logistics, inventory, staffing coordination, event readiness, and follow-up.
Provide structured project coordination for grant-funded community engagement initiatives and other strategic research projects, including milestone and action tracking, meetings, agendas, materials, follow-up, document organization, version control, progress-reporting inputs, and project documentation.
Support Community Engagement contributions to cross-program initiatives such as the CAB Impact Report and Data Hub Living with SCD report by coordinating production timelines, tracking milestones, coordinating requested inputs, and keeping community perspectives and deliverables visible.
Maintain stakeholder information and interaction records in Salesforce and other designated systems; support activity tracking, reports, status updates, program benchmarks, and performance measures.
Prepare and coordinate first drafts of routine correspondence, presentations, meeting materials, reports, and community-facing content for review by the Senior Manager and other program leads.
Collaborate across ASH and ASH RC teams on SCD clinical research, community engagement, education, outreach, and dissemination activities, and support related meetings and events as assigned.
Build and maintain productive, respectful relationships with community members, research site personnel, CAB members, volunteers, and other stakeholders.
Provide administrative support to managers and above, including calendar management, meeting scheduling and logistics, and conference room reservations.
Serve as technical host for virtual meetings, supporting remote participation and troubleshooting routine technology needs.
Coordinate travel and housing arrangements, as needed, for staff, committee members, guests, and community participants.
Prepare and format routine correspondence, presentations, meeting materials, reports, and other administrative documents.
Route contracts and other documents for review and signature and assist with maintenance of the contract management system.
Support development and maintenance of administrative workflows, templates, checklists, and tracking tools.
Assist with general office and team support, including shared coverage of phones, email inboxes, and other administrative responsibilities.
Attend and/or support occasional ASH-sponsored meetings and events outside normal business hours, including evenings and weekends.
Handle protected health information appropriately, accessing, using, and disclosing only the minimum necessary information to perform assigned responsibilities.
Travel periodically outside the local area.