SCD Community Engagement & Administration Spe

American Society Of Hematology•Washington, DC

5d•$61,300 - $70,650

About The Position

The SCD Community Engagement & Administration Specialist supports the ASH Research Collaborative (ASH RC) Sickle Cell Disease (SCD) Community Engagement Program and provides administrative coordination for designated ASH RC staff. The role advances meaningful engagement with people living with SCD, their families, Community Advisory Boards (CABs), clinical research sites, and other stakeholders. The Specialist serves as a collaborative, responsive resource to ASH RC staff and external partners in support of program goals and strategic priorities. The position coordinates program areas and projects, CAB operations and meetings, community outreach and materials, grant-funded initiatives, reporting, and stakeholder relationships. It also provides administrative support, including calendar and meeting coordination, travel arrangements, document preparation, contract routing, virtual meeting support, and general team coverage. Occasional support for ASH-sponsored events outside normal business hours, including evenings and weekends, is required.

Requirements

Bachelor's degree required.
Strong interpersonal, written, and verbal communication skills, including the ability to communicate effectively and respectfully with diverse audiences.
Demonstrated cultural humility and commitment to working effectively with marginalized and underserved populations.
Excellent organizational, coordination, and follow-through skills, strong attention to detail, and ability to manage multiple priorities.
Strong customer service orientation, professionalism, discretion, and sound judgment.
Ability and willingness to perform administrative functions in support of program coordination and implementation.
Proficiency with Microsoft Office applications, including Word, Excel, PowerPoint, and Outlook.
Ability to handle protected health information appropriately, accessing, using, and disclosing only the minimum necessary information to perform assigned responsibilities.
Ability to communicate clearly and listen actively.
Ability to use computers, telephones, and other standard office equipment.
Ability to travel periodically outside the local area.

Nice To Haves

Advanced degree preferred.
Minimum of three years of relevant professional experience in public health, advocacy, community engagement, clinical research, health care, or a related field preferred.
Experience supporting community engagement initiatives, patient advocacy programs, research programs, advisory groups, or committees is strongly preferred.
Knowledge of sickle cell disease and the individual, cultural, and societal factors affecting people living with SCD is preferred.
Experience with Salesforce or another customer relationship management system is a plus.

Responsibilities

Support implementation and advancement of the ASH RC SCD Community Engagement Program in alignment with strategic priorities.
Coordinate assigned program areas and projects from planning through completion, tracking timelines, deliverables, follow-up, deadlines, and potential risks, and escalating issues requiring higher-level decisions to the Senior Manager.
Develop and maintain tools and processes, including workflows, templates, and trackers, to improve consistency and efficiency across the Community Engagement Program.
Support SCD Coalition and ASH Center for SCD Initiatives activities related to clinical trials, research issues, and patient and community engagement.
Coordinate logistics and communications for NCAB, local CAB, Council Sites, research site, committee, working group, and other SCD community engagement meetings and events, virtually and in person.
Prepare meeting agendas, materials, participant communications, minutes, summaries, and follow-up action items; maintain rosters and related documentation.
Support local CAB coordinators with onboarding, orientation, tracking, follow-up, and routine operational guidance; identify recurring needs and recommend process improvements to the Senior Manager.
Support operational planning for monthly NCAB meetings, including scheduling, speaker coordination, materials, presentations, attendance, meeting technology, notes, action items, and follow-up.
Assist with planning and facilitating focus groups, listening sessions, community discussions, and other engagement activities, including participant communications, materials, logistics, documentation, and follow-up.
Support development, review, and dissemination of plain-language, culturally responsive materials and Community Engagement Program resources, including the CAB Program Toolkit, coordinator trainings, engagement tools, and branded resources.
Support community-facing outreach, marketing, and tabling at SCD awareness days, community recognition events, priority meetings, and other patient engagement activities, including materials, logistics, inventory, staffing coordination, event readiness, and post-event follow-up.
Provide structured project coordination for grant-funded community engagement initiatives and other strategic research projects as priorities require.
Maintain milestone and action trackers; coordinate meetings, agendas, materials, and follow-up; support document organization and version control; and assist with progress-reporting inputs and project documentation.
Support cross-program initiatives, such as the CAB Impact Report and Data Hub Living with SCD report, by coordinating production timelines, tracking milestones, coordinating requested inputs, and helping keep community perspectives and deliverables visible.
Maintain stakeholder information and interaction records in Salesforce and other designated systems, and support activity tracking, reports, status updates, benchmarks, and performance measures.
Prepare and coordinate first drafts of routine correspondence, presentations, meeting materials, reports, and community-facing content for review by the Senior Manager and other program leads.
Collaborate across ASH and ASH RC teams on SCD clinical research, community engagement, education, outreach, and dissemination activities, and support related meetings and events as assigned.
Build and maintain productive, respectful relationships with community members, research site personnel, CAB members, volunteers, and other stakeholders.
Provide administrative support to managers and above, including calendar management, meeting scheduling, meeting logistics, and conference room reservations.
Serve as technical host for virtual meetings, support remote participation, and troubleshoot routine technology needs.
Coordinate travel and housing arrangements as needed for staff, committee members, guests, and community participants.
Prepare and format routine correspondence, presentations, meeting materials, reports, and other administrative documents.
Route contracts and other documents for review and signature and assist with maintaining the contract management system.
Support development and maintenance of administrative workflows, templates, checklists, and tracking tools.
Assist with general office and team support, including shared coverage of phones, email inboxes, and other administrative responsibilities.
Attend and/or support occasional ASH-sponsored meetings and events outside normal business hours, including evenings and weekends.