Patient Programming / Ambassador Manager

Praxis Precision Medicines, Inc.

26d•$205,000 - $228,000•Remote

About The Position

The Patient Programming/Ambassador Manager for ulixacaltamide owns the strategy, planning, and execution of patient-focused programs and ambassador initiatives. The role brings the patient perspective into Praxis’ commercial organization and supports people living with essential tremor throughout their treatment journey. The manager establishes program priorities, defines success measures, and aligns resources and execution with patient needs and brand objectives. The position builds compliant relationships with patients, caregivers, and patient advocacy communities and translates their experiences into impactful programming. It leads patient ambassador strategy and activation, partners with internal and external stakeholders to develop patient-centered experiences and resources, and ensures the patient voice is represented across the brand. Accountabilities include cross-functional program planning, assigned budgets, external partner performance, and processes for consistent, compliant execution. This is a strategic, collaborative, hands-on leadership role requiring independent judgment, influence without direct authority, and accountability for program quality, patient experience, and results. The role may be performed remotely and requires flexibility and willingness to travel as needed. Physical and mental requirements include regular use of a computer, devices, or other office equipment; clear communication; occasional movement; comfort with screen work; basic hand coordination; and focus. Reasonable accommodations may be made to enable individuals with disabilities to perform these functions.

Requirements

Bachelor’s degree required.
Progressive experience in pharmaceutical, biotechnology, healthcare, patient advocacy, patient engagement, or a related field, including leading patient-focused programs and cross-functional initiatives in a regulated environment.
Demonstrated experience setting strategy and leading the development, execution, and evaluation of patient-focused programs, communities, initiatives, or engagement strategies, with accountability for priorities, resources, and results.
Strong understanding of patient privacy, appropriate boundaries, and compliance requirements when working directly with patients and caregivers.
Ability to work effectively with relevant review and approval partners throughout program development and execution.
Exceptional relationship-building skills and ability to establish trust with patients, caregivers, advocacy organizations, internal stakeholders, and external partners.
Ability to align stakeholders and influence decisions without direct reporting authority.
Ability to translate qualitative patient experiences and relevant program performance data into clear programming opportunities and action.
Strong cross-functional leadership, program management, and agency oversight skills, including managing multiple workstreams, stakeholders, and timelines and making informed prioritization decisions.
Experience managing program budgets and external partner performance, evaluating resource needs, and recommending investment priorities.
Excellent communication skills, including communicating with empathy and authenticity while maintaining professional and compliance boundaries and presenting strategic recommendations and results to senior stakeholders.
Comfort operating in ambiguity and building new programs and capabilities in a fast-moving environment.
High level of ownership, judgment, organization, and attention to detail.
Ability to meet the role’s physical and mental requirements, including regular computer/device and office-equipment use, clear communication, occasional movement, screen work, basic hand coordination, and focus; reasonable accommodations may be available.

Nice To Haves

An advanced degree in business, life sciences, communications, public health, or a related field.
Experience in CNS, neurology, movement disorders, essential tremor, or another specialty disease area.
Experience managing patient ambassador, speaker, advocate, influencer, or similar external engagement programs.

Responsibilities

Own the patient programming strategy and annual operating plan for ulixacaltamide, including patient needs, priority audiences, objectives, engagement approaches, and measures of success.
Establish priorities, recommend resource allocation, and adapt plans based on patient insights, program performance, and evolving brand needs.
Lead the strategy and end-to-end management of the patient ambassador program, including identification, recruitment, onboarding, training, engagement, relationship management, and evaluation.
Establish program standards and repeatable processes that support an authentic patient voice, consistent participant experiences, and compliant engagement.
Design and deliver patient and caregiver experiences and programs that address identified needs and provide appropriate, compliant opportunities to engage with Praxis.
Translate patient and caregiver insights into prioritized program recommendations and coordinate execution across internal and external partners.
Advocate for the patient voice and translate patient and caregiver insights into recommendations that inform cross-functional brand planning and program priorities.
Represent patient programming and ambassador initiatives in brand planning discussions and present insights, recommendations, and results to brand and commercial leadership.
Build trusted relationships with patient advocacy organizations and external stakeholders and identify appropriate collaboration, education, and community engagement opportunities.
Coordinate outreach with internal stakeholders, clarify responsibilities, and maintain appropriate engagement boundaries.
Lead external agencies and internal partners in developing and executing patient programs; define scopes of work, deliverables, timelines, and performance expectations; address execution risks and escalate material issues.
Define program success measures and lead performance reviews using participant feedback, patient insights, engagement measures, and other available data; evaluate results and recommend improvements to program design, investment, and execution.
Manage assigned patient programming and ambassador budgets, including planning, forecasting, spend monitoring, and recommendations for adjustments.
Partner with Medical, Legal, Regulatory, Compliance, and other relevant stakeholders to establish review processes and ensure activities follow company policies and applicable requirements, including patient consent, privacy, and appropriate engagement boundaries.