Community Advocacy Specialist

Travere Therapeutics • Massachusetts - Remote, MA

4d • $85,000 - $105,000 • Remote

About The Position

The Community Advocacy Specialist builds and sustains trusted relationships with patients, families, caregivers, patient advocacy organizations, and other community stakeholders while supporting meaningful community programs. Initially focused on rare kidney disease, the role combines external engagement, field insight gathering, and program coordination to inform Travere’s patient engagement strategy and educational priorities. Reporting to the Director, Community Advocacy, the Specialist independently manages assigned relationships, outreach activities, and program responsibilities within approved plans and guidelines. The role supports Travere’s reputation as a trusted community partner and its growth as a multi-asset company and rare disease leader.

The Specialist cultivates relationships and represents Travere at patient meetings, educational programs, conferences, and community events. The position gathers and synthesizes community insights, coordinates local and virtual programs—including RKD and Me programming and ambassador activities—and maintains accurate relationship records, project plans, budgets, expenses, and program metrics. The role collaborates with internal colleagues while working within approved budgets, plans, decision authority, privacy requirements, and established functional boundaries.

The position is remote in Massachusetts and requires the ability to travel up to approximately 50 percent domestically for community events, patient programs, conferences, and internal meetings, including occasional evening and weekend commitments.

Requirements

• Bachelor’s degree in public health, communications, healthcare, nonprofit management, or a related discipline, or an equivalent combination of education and relevant experience.
• At least four years of experience in patient advocacy, including community engagement, patient or caregiver programs, or external stakeholder relationships.
• Demonstrated experience cultivating relationships with patients, caregivers, advocacy organizations, or community partners and independently managing assigned projects or programs.
• Working knowledge of the external rare kidney disease landscape, including patient organizations, community needs, and relevant scientific and treatment advancements.
• Experience interacting with healthcare professionals and communicating effectively with varied external audiences.
• Experience with public speaking, presentations, or group facilitation, with the ability to communicate clearly and adapt to audience needs.
• Sound independent judgment, initiative, and accountability, including recognizing when to seek guidance or escalate an issue.
• Strong listening, relationship-building, written communication, and public speaking skills; empathy and discretion when engaging patients and families.
• Ability to translate community observations into clear insights and practical recommendations while respecting the limits of available information.
• Strong organization, project coordination, attention to detail, and proficiency with Microsoft Office and relationship or project tracking systems.
• Ability to understand and accurately communicate approved disease education within role boundaries; familiarity with privacy, compliance, and ethical principles affecting patient advocacy.
• Ability to travel up to approximately 50 percent domestically, including occasional evening and weekend commitments.

Nice To Haves

• Experience in rare kidney disease or another rare disease community, particularly in a pharmaceutical, biotechnology, healthcare, or nonprofit setting.
• Experience with ambassador programs, community education, grassroots outreach, or culturally responsive engagement.
• Bilingual proficiency, including Spanish.

Responsibilities

• Cultivate and steward assigned relationships with patient advocacy organizations, community-based organizations, patients, families, caregivers, and other community stakeholders; serve as a day-to-day contact and follow through on agreed actions.
• Identify opportunities to broaden engagement with local organizations and expand reach to less-connected populations.
• Represent Travere at patient meetings, educational programs, conferences, and community events, engaging stakeholders with empathy, cultural humility, and respect for their priorities and independence.
• Interact professionally with healthcare professionals and community leaders to understand local needs and support approved community education and engagement activities.
• Prioritize routine outreach, respond to partner needs, recommend next steps, and escalate sensitive matters, new commitments, or issues requiring strategic, medical, or compliance guidance.
• Gather insights through field interactions and approved listening activities, including patient and caregiver experiences, educational gaps, barriers to engagement, and unmet community needs.
• Document and synthesize observations into concise summaries and recommend opportunities to inform patient engagement strategy, educational priorities, and future programs.
• Share insights with Community Advocacy leadership and relevant Patient Advocacy colleagues and support follow-up so community perspectives inform planning and program improvements.
• Maintain working knowledge of the rare kidney disease advocacy landscape, emerging scientific advancements, and evolving patient education needs through approved resources and internal learning.
• Coordinate assigned local and virtual programs, listening sessions, educational events, and grassroots activities from planning through follow-up, with accountability for timelines and deliverables.
• Support RKD and Me programming and patient and caregiver ambassador activities, including participant engagement, onboarding coordination, scheduling, communications, and approved storytelling activities.
• Coordinate venues, invitations, registration, vendors, travel, accessibility, materials, and on-site needs; resolve routine execution issues and elevate material risks with proposed solutions.
• Gather participant feedback and assess attendance, reach, participant experience, and lessons learned to recommend practical program improvements.
• Maintain accurate relationship records, engagement histories, commitments, project plans, budgets, expenses, and program metrics while managing assigned work with limited day-to-day supervision.
• Prepare meeting briefs, presentations, outreach communications, and program summaries; coordinate required internal reviews and use approved materials.
• Collaborate with therapeutic advocacy leads, Rare Kidney Educators, Corporate Communications, Patient Marketing, Medical Affairs, and other colleagues as appropriate to assigned initiatives and established functional boundaries.
• Operate within approved budgets, plans, and decision authority; protect patient privacy, follow applicable policies, preserve the independence of patient organizations, and route requests outside Community Advocacy priorities to the Director for alignment.

Benefits

• Premium health, financial, work-life, and well-being offerings for eligible employees and dependents.
• Wellness and employee support programs.
• Life insurance and disability benefits.
• Retirement plans with employer match.
• Generous paid time off.
• Cash compensation consisting of base pay and short-term incentive.
• Long-term incentive compensation in the form of company stock.

What This Job Offers

• Job Type: Full-time
• Career Level: Mid Level