Sr. Manager, Patient Advocacy, Global Rare Diseases

Chiesi Farmaceutici•Boston, MA

5d•Hybrid

About The Position

Chiesi is looking for a highly motivated, collaborative, and compassionate individual for the position of Sr. Manager, Patient Advocacy in the Global Rare Diseases business unit. Reporting to the Head Patient Advocacy, this individual will develop and execute programs in the US, Canada, and Latin America (Americas) based on the global patient advocacy strategy. The rare disease therapeutic area of focus is Heredity Angioedema (HAE). We are looking for someone who has the desire to make a difference for patients and the rare disease community by developing and expanding relationship-partnerships with patient advocacy organizations and ensure that the needs and insights from these relationships are reflected in Chiesi’s decision-making process. You will represent the “voice of the patient” to educate internal cross-functional teams and champion patient-centered ideas and programs.

Requirements

5+ years of experience in the bio-pharmaceutical environment with at least 2 years of relevant professional experience in rare disease and patient advocacy.
Bachelor’s degree in social science, public health, science, or related field.
Strong communication, networking, and interpersonal skills; ability to build relationships and establish trust with a wide range of stakeholders.
Good listening skills and ability to identify needs from multiple stakeholders; ability to translate terms and concepts to audiences with different perspectives and levels of understanding.
Demonstrated passion for supporting patient and underserved communities
Ability to work collaboratively across all functions and levels of influence both internally and externally.
Understanding of drug research and development, regulatory, compliance and disclosure guidelines.
Strong project and program management skills.

Nice To Haves

Advanced degree a plus.

Responsibilities

Contribute to the Global Rare Disease patient advocacy strategy, reflecting Chiesi’s commitment to the patient community.
Develop and implement plans to directly engage US and Canadian patient communities and share projects and programs with Chiesi Head Patient Advocacy LATAM Region, while working cross-functionally with key internal partners.
Serve as primary point of contact to build and maintain collaborative, long-term partnerships with stakeholders and patient advocacy groups and compliantly exchange information related to Chiesi Rare Diseases areas of interest.
Represent the patient perspective during strategy meetings and contribute to the successful implementation and achievement of business goals.
Propose and implement patient advocacy programs and partnerships that include educational programs, advisory boards, patient speaker engagement, policy advocacy, and related initiatives.
Work with advocacy groups to provide compliant resources to help them further develop, grow, and build capabilities.
Champion the patient voice based on understanding the patient perspective to inform internal decision making.
Conduct engagements in adherence with legal, compliance and regulatory guidelines to ensure Chiesi Rare Diseases relationships with advocacy stakeholders are respectful and appropriate.
Represent Chiesi Rare Diseases at specific meetings and present when needed.