Lead, US Public Affairs & Patient Advocacy Rare Diseases
About The Position
The Rare Disease Patient Advocacy L3-1 is responsible for supporting and contributing to patient advocacy strategies across rare disease therapeutic areas. This role sustains trusted relationships with rare disease patient advocacy groups, and other key public affairs stakeholders to amplify the patient voice in Sanofi's internal and external initiatives. The role operates in close collaboration with cross-functional teams including Corporate Affairs, Medical Affairs, Commercial, and R&D to ensure patient-centric approaches are embedded throughout the product lifecycle. Role will primarily focus on Rare and Rare Blood Disorder pipeline or related disease areas, and will contribute operationally across Sanofi’s rare disease portfolio and pipeline.
Requirements
- Bachelor's degree in Life Sciences, Public Health, Communications, or related field.
- Minimum 2-4 years of experience in patient advocacy, public affairs, or a related function within the pharmaceutical or biotech industry, preference for experience with the rare disease community.
- Demonstrated experience working with rare disease patient communities and advocacy organizations.
- Proven ability to build and sustain trusted relationships with external stakeholders.
- Excellent written and verbal communication skills, including the ability to craft compelling narratives.
- Demonstrated AI-native ways of working, uses AI tools daily as core instruments of strategy, analysis, writing, and decision-making rather than occasional aids.
- 25% travel required (conferences, conventions, and meetings)
- A working command of the compliance frameworks governing industry interactions with advocacy and healthcare organizations, including funding and transparency requirements, with a track record of operating impeccably within them.
Nice To Haves
- Advanced degrees (JD, PharmD, MPH, MD, PhD, a plus).
- Experience in clinical trial and pipeline development and or related diseases.
- Experience with project management, impact reporting and budgeting.
Responsibilities
- Manage strategic partnerships with rare disease patient advocacy organizations, foundations, and caregiver networks. Develop and execute partnerships that align organizational goals with Sanofi's rare disease priorities, ensuring relationships are built on transparency, trust, and shared commitment to patient outcomes.
- Lead, manage, and support Sanofi’s key Public Affairs and Patient Advocacy initiatives and projects in relationship to pipeline development. Develop advocacy landscape assessments that identify key stakeholders, trends, and opportunities for engagement. Manage projects and ensure Sanofi is capturing key metrics and data to demonstrate impact and develop meaningful impact reports.
- Support the Head of US PA&PA Rare Diseases to implement comprehensive patient advocacy strategies for rare disease therapeutic areas. The Lead will manage budgets, timelines and metric reporting.
- Serve as a point of contact and relationship manager for patient advocacy organizations, disease-specific foundations, rare disease coalitions and patient community leaders. Represent Sanofi at rare disease conferences, patient summits, advisory boards, and advocacy events.
- Act as the patient advocacy liaison to internal cross-functional teams including Medical Affairs, Regulatory Affairs, Market Access, Health Economics & Outcomes Research (HEOR), Clinical Development, Commercial, and other functions of Corporate Affairs. Ensure the patient perspective is embedded throughout the product lifecycle.
- Ensure all patient advocacy activities are conducted in full compliance with Sanofi's policies, industry codes, and applicable regulations.
Benefits
- Employees may be eligible to participate in Company employee benefit programs.
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What This Job Offers
Job Type
Full-time
Career Level
Mid Level
