RN Senior Clinical Program Specialist for Genetics Specialty Programs
About The Position
Cincinnati Children’s is seeking an experienced Registered Nurse to support the development, coordination, and advancement of specialty programs serving children and families with rare metabolic conditions and Neurofibromatosis (NF). The role works collaboratively with multidisciplinary clinical teams, patients, families, national organizations, and other partners to strengthen education, care coordination, and outcomes. It offers an opportunity to apply nursing expertise to program work beyond direct patient care. Prior clinical program development or coordination experience is beneficial but not required. The position coordinates assigned programs and supports leadership with planning, implementation, evaluation, and achievement of short- and long-term goals. It serves as a primary liaison for program administration and operations, including data management, communications, outreach, education, and conferences. The role also develops evidence-based educational resources and training, coordinates family and professional education, and contributes to strategic planning and project execution. The specialist monitors and reports program quality metrics and outcomes, evaluates program effectiveness, and identifies opportunities to improve care coordination, patient experience, access, and health equity. Work includes supporting standardized care pathways, newborn screening follow-up, treatment and surveillance tracking, national registries, benchmarking, and quality collaboratives. Broader program duties described in the posting may include communications and marketing support, grant and data administration, quality improvement, project coordination, operational and financial support, and compliance-related activities. The position is full-time, 40 hours per week, with a schedule of either five 8-hour shifts or four 10-hour shifts. The shift is days. The posted expected starting pay range is $83,969.60–$107,224.00; starting pay depends on experience, skills, and equity, and additional pay or benefits may apply.
Requirements
- Bachelor’s degree in Nursing (BSN).
- Five or more years of related professional experience.
- Current Registered Nurse (RN) licensure.
- Strong project coordination, organizational, communication, and relationship-building skills.
- Ability to work independently, take initiative, manage multiple priorities, and collaborate effectively across multidisciplinary teams.
- Proficiency in developing educational materials, coordinating events, and monitoring program outcomes.
Nice To Haves
- Master’s degree in Nursing or a related healthcare field.
- Experience in pediatric nursing, specialty care, rare diseases, metabolic conditions, or Neurofibromatosis.
- Experience supporting clinical program development, coordination, education, or quality improvement initiatives.
Responsibilities
- Coordinate and support the development and implementation of clinical programs and initiatives for patients with rare metabolic conditions and Neurofibromatosis.
- Plan and execute the annual Metabolic Family Education Day and Neurofibromatosis Family Conference.
- Coordinate educational workshops, webinars, support groups, professional training events, and initiatives supporting transition from pediatric to adult care.
- Collaborate with multidisciplinary clinical teams to identify program needs, set priorities, and implement initiatives that improve patient and family experiences.
- Support the development and implementation of standardized care pathways to promote consistency and reduce variation in clinical practice.
- Develop, coordinate, and maintain patient and family educational resources reflecting current evidence, treatment guidelines, and emerging therapies.
- Support continuing education and professional training for healthcare providers; provide education and serve as a resource to multidisciplinary staff.
- Partner with national advocacy organizations, specialty networks, healthcare institutions, and professional and lay communities to expand educational outreach and share resources.
- Collect, monitor, analyze, and report clinical quality metrics related to patient outcomes, access to care, treatment adherence, and patient satisfaction.
- Track outcomes associated with newborn screening follow-up, enzyme replacement therapies, gene-targeted treatments, and Neurofibromatosis surveillance protocols.
- Evaluate program effectiveness and identify opportunities to improve care coordination, patient experience, access, and health equity.
- Facilitate participation in national registries, benchmarking initiatives, rare disease networks, quality collaboratives, Neurofibromatosis registries, and metabolic consortium initiatives.
- Support program leadership with strategic planning, goal implementation, daily administration, operational issues, and project planning and reporting.
- Coordinate program communications, outreach, marketing, conference activities, website content updates, and educational or social media content as assigned.
- Support grant applications and submissions, manuscript and reference materials, program data and records, budgets, and other program administration as assigned.
- Identify and implement process, quality, and operational improvements; support data quality and reporting improvements.
- Collaborate on departmental or organization-wide project plans, document project information, and report tasks and status to project leads.
- Support program operations and compliance with applicable organizational and regulatory requirements as described in the posting.
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What This Job Offers
Job Type
Full-time
Career Level
Senior
