Director, Patient Affairs, Community Scientific Engagement

Sarepta Therapeutics • Cambridge, MA

1d • Hybrid

About The Position

The Director, Patient Affairs, Community Scientific Engagement supports patient-centered communications and engagement initiatives that make scientific and clinical information more accessible, understandable, and relevant to patients, caregivers, and advocacy communities. Reporting to the Executive Director of Scientific Engagement and Strategy, the role partners with Patient Affairs, Medical Affairs, and other cross-functional teams to translate approved scientific information into clear communications that reflect patient needs, perspectives, and priorities. It also supports collecting, synthesizing, and communicating patient and stakeholder insights to inform Patient Affairs strategies, programs, and engagement activities.

The role leads development and execution of plain-language scientific summaries for patient and advocacy audiences, reviews scientific publications, congress presentations, and emerging clinical data for information relevant to patients, and partners with subject matter experts to support accurate, accessible communications. It also supports patient advisory boards and stakeholder engagement, helps bring patient perspectives into internal planning, and collaborates across Patient Affairs, Medical Affairs, Clinical Development, Corporate Affairs, and other functions.

This position manages multiple projects and priorities, delivers high-quality work within established timelines, and responds flexibly to changing business and stakeholder needs. It is hybrid: the employee is expected to work onsite at a Sarepta facility in the United States and/or attend company-sponsored in-person events from time to time. Candidates must be authorized to work in the U.S. The targeted salary range is $185,600–$232,000 per year; offers may consider education, training, experience, market conditions, role criticality, and internal equity.

Requirements

• Bachelor's degree required.
• Experience in patient communications, patient engagement, scientific communications translation, health education, advocacy engagement, or a related function.
• Demonstrated ability to translate complex scientific and clinical information into clear, accessible communications for patient and stakeholder audiences.
• Experience gathering, analyzing, and synthesizing stakeholder insights to support strategic decision-making.
• Experience supporting advisory boards, patient engagement programs, advocacy partnerships, or related stakeholder activities.
• Strong written, verbal, and visual communication skills.
• Ability to work effectively across functions and build collaborative relationships with diverse stakeholders.
• Strong organizational skills and demonstrated ability to manage multiple priorities in a fast-paced environment.
• Commitment to patient-centricity and incorporating the patient voice into communications and engagement activities.
• Must be authorized to work in the U.S.

Nice To Haves

• Advanced degree such as PhD, PharmD, DNP, MPH, or a related discipline.

Responsibilities

• Translate approved scientific and clinical information into clear, accessible, patient-friendly communications across educational resources, patient-facing materials, digital content, and engagement tools.
• Support communications that help patients and caregivers understand disease, treatment, and research-related information.
• Collaborate with patient stakeholders, advocacy organizations, and internal partners to ensure communications are relevant, culturally appropriate, and responsive to patient needs and experiences.
• Contribute to patient-centered communication strategies supporting engagement, education, and advocacy objectives.
• Lead the development and execution of plain-language scientific summaries for patient and advocacy audiences, aligned with the broader Patient Affairs Scientific Engagement & Strategy.
• Review scientific publications, congress presentations, and emerging clinical data to identify information that may be meaningful to patient stakeholders.
• Develop patient-friendly summaries, educational resources, and communication materials based on approved scientific content.
• Partner with Medical Affairs and subject matter experts to ensure patient-facing communications accurately represent scientific information and are understandable to non-scientific audiences.
• Adapt scientific content into formats that are meaningful and accessible for patient communities.
• Gather, synthesize, and communicate insights from patients, caregivers, advocacy organizations, advisory boards, and other stakeholders.
• Identify themes, unmet needs, and perspectives that may inform Patient Affairs priorities and engagement strategies.
• Work with the Executive Director and cross-functional teams to integrate patient insights into communication planning and stakeholder engagement activities.
• Develop summaries and reports communicating patient and stakeholder perspectives to internal audiences.
• Support planning and execution of patient advisory boards and stakeholder engagement activities, including agenda development, meeting materials, facilitation support, and synthesis of insights and recommendations.
• Help ensure patient perspectives are reflected in Patient Affairs programs, communications, and engagement initiatives.
• Build collaborative relationships with patient stakeholders and advocacy partners to support ongoing dialogue and engagement.
• Collaborate with Patient Affairs, Medical Affairs, Clinical Development, Corporate Affairs, and other functions on patient-focused initiatives.
• Serve as a Patient Affairs communications resource, connecting scientific information, patient insights, and stakeholder needs.
• Support cross-functional efforts to incorporate the patient voice into communication and engagement activities.
• Manage multiple projects and priorities while maintaining high-quality deliverables.
• Contribute to execution of Patient Affairs communication and engagement initiatives within established timelines.

Benefits

• Competitive compensation and benefit package.
• Benefits and work-life resources supporting physical and emotional wellness, financial wellness, and caregivers.

What This Job Offers

• Job Type: Full-time
• Career Level: Director