Director of Patient Engagement

The Michael J. Fox Foundation for Parkinson's Research
•$145,000 - $165,000

About The Position

The Director of Patient Engagement aligns the Foundation’s investments with its broader scientific goals by developing inclusive, patient-centric participant engagement strategies. The role advances patient-centricity best practices so that Foundation-coordinated and external clinical studies address the needs of, and reflect, the Parkinson’s community. The Foundation believes patient-centered study designs improve the likelihood of meeting recruitment goals and accelerating the development of new Parkinson’s treatments. The Director leads project and relationship managers focused on patient-centricity in clinical Parkinson’s research and is accountable for allocating financial and people resources to meet strategic deliverables. The position helps maintain the Foundation’s leadership in developing resources for patient-centered drug development and works with a diverse range of internal and external stakeholders. It serves as a key liaison between those stakeholders and external partners, helping flagship clinical programs advance the broader research agenda and drive innovation in Parkinson’s therapeutic development.

Requirements

  • Relevant experience in biopharma, healthcare consulting, clinical research, or public health, including previous program management responsibilities.
  • Relevant people-management experience, such as team leadership, delegation, coaching, and talent development.
  • Working knowledge of and interest in clinical research practices, especially patient-centricity.
  • Demonstrated commitment to and knowledge of diversity, equity, and inclusion principles in personal or professional settings.
  • Ability to identify short- and long-term program needs, develop plans with cross-functional input, achieve timely decisions and alignment, and organize and deploy resources.
  • Ability to influence cross-functionally and drive alignment among team members, peers, and senior leadership, with a demonstrable level of executive presence.
  • Exceptional written and verbal communication skills, including the ability to articulate program vision, motivate a team, and keep the organization aligned and informed about program strategy, status, and risks.
  • Strong decision-making abilities amid ambiguity, including sound judgment on difficult issues and accountability for decisions.
  • Excellent critical-thinking and problem-solving skills, including team-based problem-solving approaches.
  • Financial acumen and experience managing budgets.

Responsibilities

  • Identify, scope, and execute strategic programs aligned with the Foundation’s Clinical Research priorities and Research Business Unit vision, in collaboration with the Research Leadership Team and external advisors.
  • Train, coach, and develop project and relationship managers focused on optimizing patient-centricity in clinical-stage Parkinson’s trials.
  • Oversee project- and program-level budgets and hold the team accountable for annual financial targets.
  • Oversee the refinement and dissemination of recruitment and retention best practices for global cohort studies.
  • Monitor trends and anticipated challenges in clinical-trial recruitment and patient-centricity for Parkinson’s and related disorders, and use these insights to prioritize research funding and stakeholder engagement.
  • Manage strategic plans from concept development through internal and external buy-in, resource allocation, risk monitoring, and problem-solving.
  • Serve as a thought and accountability partner on cross-functional initiatives and track progress against department, business unit, and organizational key performance indicators.
  • Support annual strategic planning for the Clinical Research team, including prioritizing and allocating resources, identifying and scoping strategic imperatives, and assessing performance against funding and scientific goals.
  • Create executive-level communications, including presentations and reports, to communicate the impact of Clinical Research activities and support alignment and coordination across major business-unit and enterprise programs and projects.
  • Build relationships with clinical study leadership, operational partners, clinical site network personnel, key opinion leaders, and the patient and participant community.

Benefits

  • More than 15 medical insurance options, with the Foundation paying 90 percent of premiums.
  • Competitive dental and vision plans.
  • 401(k) plan with a 6 percent employer contribution.
  • Flexible spending accounts.
  • Employer-paid life and disability insurance.
  • 18 vacation days, 12 well-being (sick) days, and 2 personal days.
  • Summer Fridays with office closure at 2 p.m. and a summer holiday week over July 4.
  • Flexible work environment, with employees coordinating with managers and colleagues to determine when, where, and how work is done.
  • Eligibility for an annual discretionary bonus.
  • Regular training courses and events for staff and leadership cultivation.
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