Senior Director, Patient Advocacy & Engagement

Ultragenyx Pharmaceutical

1d•$247,200 - $305,300•Remote

About The Position

At Ultragenyx, we are dedicated to leading the future of rare disease medicine by challenging the status quo and creating a new model that advances the field for patients and caregivers. We achieve this by following the science, employing a rapid development approach, making innovative medicines at fair prices, and fostering a collaborative ecosystem. Our commitment extends to our people, creating a supportive and inclusive environment for learning and growth. We aim to be an organization where employees can have a meaningful impact, do the best work of their careers, and grow professionally and personally.

Requirements

10+ years within the biotechnology/pharmaceutical industry
10+ years of patient advocacy experience; rare disease experience preferred
Bachelor's degree is required
Experience with working with patients, caregivers and advocacy groups across the medicines lifecycle
Ability to summarize and communicate complex medical and scientific information using terms and concepts that are most relevant, understandable, and appropriate for rare disease communities
Able to think strategically, with extensive tactical planning and execution experience
Excellent verbal, written, and presentation skills (internal and external)
Extensive knowledge of all appropriate regulatory, compliance and legal requirements
Ability to travel 25%

Nice To Haves

rare disease experience preferred

Responsibilities

Build and steward authentic relationships based on respect, understanding and advancing patient focused priorities.
Embed patient and caregiver perspective and strategic insights from our communities across business strategy, accelerating existing efforts and identifying new opportunities to meaningfully partner across the medicines lifecycle.
Understand and navigate internal stakeholder engagement, ensuring plans reflect cross functional engagement; facilitating the compliant exchange of complex scientific information related to Ultragenyx areas of research, product development and commercialization.
Partner closely with Government Affairs, Communications and Regulatory to ensure appropriate patient, caregiver and advocacy leader awareness of, and engagement with, regulatory agencies and policymakers on issues of access and reimbursement.
Demonstrate leadership within the Patient Advocacy team, across Ultragenyx, and externally with the goal of fostering a best-in-class patient advocacy function.
Oversee the patient advocacy budget, ensuring company resources are used efficiently and effectively, including the management of external strategic partners.