Head of Patient Experience and Strategy

argenx

2d • $228,000 - $313,500 • Remote

About The Position

The Head of Patient Experience and Strategy will shape how patient perspectives influence decisions across argenx and make patient experience a defining strength of the company. This leader will build and lead STEP (Strategy Team for the Experience of the Patient), a global, cross-functional community spanning development, clinical operations, medical affairs, patient advocacy, commercial, market access, corporate affairs and regional teams.

This is a builder role focused on defining the vision, strategy, capabilities and ways of working needed to keep argenx connected to patients as it grows. The Head will bring people together around shared priorities, translate insight into action, and develop approaches that can scale across teams, geographies and stages of the product lifecycle. Acting as a connector, catalyst and strategic thought partner, the role helps ensure patient perspectives are a trusted and consistent input into important decisions, while enabling the teams closest to patients to lead execution.

As part of Corporate Affairs, the leader will partner across the company to strengthen how argenx listens, learns and responds to the communities it serves. The role will also help shape a broader view of stakeholder experience, connecting insights and experiences across patients, healthcare professionals, policymakers, employees and other stakeholders.

The role requires 15 or more years of relevant experience, deep knowledge of biotech and the patient journey, and a record of leading global patient experience or engagement strategies. The position is remote and offers a U.S. annual base salary hiring range of $228,000 to $313,500. It is eligible for short- and long-term incentive programs and includes a comprehensive benefits package, including retirement savings plans and health benefits.

Requirements

• 15 or more years of experience in patient experience, patient engagement, patient advocacy, healthcare strategy, medical affairs, clinical development, corporate affairs or related disciplines.
• Deep understanding of the biotech industry and the patient journey.
• Demonstrated success defining and leading global patient experience or patient engagement strategies across functions, geographies and stages of the product lifecycle.
• Proven ability to translate patient perspectives and insights into meaningful business, development, clinical, commercial and organizational decisions.
• Experience building and leading cross-functional communities, governance models or enterprise-wide capabilities that turn strategy into measurable action.
• Credibility and experience partnering with patient leaders, advocacy organizations and patient communities to build trusted, transparent and long-term relationships.
• Strong understanding of patient-centered drug development, including opportunities to influence study design, recruitment, enrollment and clinical trial experience.
• Experience partnering with senior leaders and serving as a strategic advisor on patient experience, stakeholder engagement and organizational priorities.
• Demonstrated ability to influence across teams without direct authority, align diverse stakeholders and create momentum around shared priorities.
• Exceptional communication, facilitation, relationship-building and storytelling skills.
• Ability to thrive in a fast-paced, global and evolving environment with a builder mindset, strong judgment and bias for action.

Nice To Haves

• Experience in rare disease or other complex healthcare environments.

Responsibilities

• Lead and evolve STEP, building a capability that brings structure to patient experience and translates patient insight into meaningful action.
• Bring together expertise across functions, geographies and lifecycle stages to align on shared priorities and drive action.
• Create the governance, focus and ways of working needed for STEP to turn ideas into impact.
• Define where STEP can connect, catalyze and deliver, while enabling teams closest to patients to lead execution.
• Define and champion a vision for patient experience that positions patients as partners in innovation, decision-making and impact.
• Build strategies, capabilities and approaches that help patient perspectives consistently shape how argenx operates and grows.
• Identify opportunities for patient insight to influence decisions, experiences and outcomes across the lifecycle.
• Connect insights across teams and geographies and ensure they lead to meaningful action and change.
• Partner with Corporate Affairs leaders to shape a broader view of stakeholder experience.
• Build a consistent approach to capturing, synthesizing and activating patient insights.
• Integrate patient perspectives into key decisions across development, clinical operations, commercial strategy and corporate affairs.
• Create forums, tools and mechanisms that make patient insight accessible, actionable and connected to decision-making.
• Define how patient influence and impact are measured across the organization.
• Shape a global approach to patient engagement grounded in trust, transparency and long-term partnership.
• Build relationships with patient leaders, advocacy organizations and rare disease communities around the world.
• Identify opportunities to work with patients and communities to advance shared goals and improve outcomes.
• Partner with Policy and Government Relations on initiatives where patient voices can help shape broader system change.
• Partner with development and clinical operations leaders to strengthen how patient perspectives inform study design, recruitment and trial experience.
• Identify scalable approaches that improve enrollment and reduce barriers to participation.
• Bring cross-functional teams together around priority opportunities where patient experience can accelerate development outcomes.
• Partner across Corporate Affairs so patient perspectives inform company communications, engagement and trust-building.
• Bring authentic patient insights and experiences into company narratives, stakeholder engagement and reputation-building efforts.
• Help ensure the argenx Way is reflected in how the company partners with and shows up for patients worldwide.
• Establish meaningful measures demonstrating the impact of patient experience on decisions, outcomes and ways of working.
• Build accountability for patient-centered outcomes across STEP priorities and initiatives.
• Promote a culture that measures success by the difference patient perspectives make, not only by engagement.

Benefits

• Retirement savings plans.
• Health benefits.
• Other benefits subject to the applicable plans and program guidelines.
• Eligibility to participate in short-term and long-term incentive programs, subject to plan terms and applicable policies.

What This Job Offers

• Job Type: Full-time
• Career Level: Executive
• Education Level: No Education Listed