Director, US Patient Advocacy & Professional Engagement

Insmed Incorporated

4d • Remote

About The Position

At Insmed, every moment and every patient counts — and so does every person who joins in. As a global biopharmaceutical company dedicated to transforming the lives of patients with serious and rare diseases, you’ll be part of a community that prioritizes the human experience, celebrates curiosity, and values every person’s contributions to meaningful progress. That commitment has earned us recognition as Science magazine’s No. 1 Top Employer for five consecutive years, certification as a Great Place to Work® in the U.S., and a place on The Sunday Times Best Places to Work list in the UK. For patients, for each other, and for the future of science, we’re in. Are you? About the Role: We’re looking for a Director, US Patient Advocacy & Professional Engagement to help us expand what’s possible for patients with serious diseases. Reporting to the VP, Patient Advocacy, the Director, US Patient Advocacy & Professional Engagement will play a pivotal role in building and leading US-based patient advocacy and professional society engagements and collaborations, with a focus on Bronchiectasis and NTM Lung Disease. The primary goal for this role will be to cultivate positive relationships with patient communities, advocacy groups, professional medical associations and individual patients, to better understand their needs, experiences, and challenges. This individual will be instrumental in providing the patient voice and perspective as we design and implement our clinical development programs. You will be the bridge between patients, patient organizations, and our organization, ensuring their perspectives influence our decision-making processes, clinical development strategies, and patient support initiatives. You will lead engagements with professional medical associations by setting the strategy and leading execution to evolve disease understanding and education.

Requirements

• You must have a Bachelor's degree in life sciences, healthcare, public health, or a related field and 7+ years’ experience in patient advocacy/engagement or closely related roles within the biotechnology and pharmaceutical healthcare industries.
• Deep understanding of respiratory conditions, including NTM Lung Disease and Bronchiectasis, with an ability to communicate complex scientific concepts to diverse audiences.
• Consistent track record of performance in developing and driving strategic projects, including leading budgets.
• Excellent communication and social skills to engage with patients, advocacy groups, and internal collaborators effectively.
• Experience working across multiple therapeutic areas and prioritizing appropriately.
• Demonstrated peer leadership experience and ability to inspire and motivate a matrixed team.
• Deep appreciation for patients and their families, with a passion for advocating on their behalf.
• Knowledge of regulatory and ethical considerations related to patient advocacy and engagement.
• Familiarity/experience with regulatory and pharmaceutical legal promotional review processes.
• Passionate for making a difference in the lives of patients with serious and rare disease.
• Acute organizational skills with a strong attention to detail, clarity, accuracy, and conciseness.

Nice To Haves

• Advanced degree (MBA, PharmD, PhD, MD) strongly preferred.

Responsibilities

• Develop and implement an External Partner engagement strategy aligned to internal business needs and external community needs.
• Partner with Patient Organizations to identify and implement innovative initiatives to empower patient communities to seek optimal and informed care.
• Participate in and support Patient Organization events, workshops, and conferences to elevate awareness and champion patient community engagement.
• Collaborate and co-create with Professional Medical Associations to identify and implement innovative initiatives and partnerships intended to address the evolving medical science related to Insmed’s therapeutic areas, as directed.
• Provide insight into Health Policy and Access & Reimbursement trends to ensure Patient Organizations have a thorough understanding of the access and reimbursement landscape.
• Implement a detailed framework to ensure patient experience is incorporated into all critical business decisions across the asset lifecycle.
• Engage with patient advocacy groups, foundations, and individual patients to see their point of view and needs as it relates to Patient-Focused Drug Development.
• Establish and maintain strong relationships with key collaborators in the patient community.
• Collaborate with cross-functional teams to ensure patient perspective is internally understood and incorporated into company culture and patient needs are considered at all stages of product development.
• Collaborate with Clinical Development, Medical Affairs, Regulatory, Corporate Communications, Human Resources, Legal, and Compliance to ensure that Insmed’s core values and corporate brand are represented in internal and external initiatives.
• Represent the company in external forums and conferences related to patient advocacy.

Benefits

• Comprehensive medical, dental, and vision coverage and mental health support, annual wellbeing reimbursement, and access to our Employee Assistance Program (EAP)
• Generous paid time off policies, fertility and family-forming benefits, caregiver support, and flexible work schedules with purposeful in-person collaboration
• 401(k) plan with a competitive company match, annual equity awards, and participation in our Employee Stock Purchase Plan (ESPP), and company-paid life and disability insurance
• Company Learning Institute providing access to LinkedIn Learning, skill building workshops, leadership programs, mentorship connections, and networking opportunities
• Employee resource groups, service and recognition programs, and meaningful opportunities to connect, volunteer, and give back

What This Job Offers

• Job Type: Full-time
• Career Level: Director
• Number of Employees: 501-1,000 employees