Director Patient Advocacy

MoonLake Immunotherapeutics US, Inc. • Miami, FL

7d

About The Position

The Director Patient Advocacy will lead patient advocacy strategy and engagement within the Marketing team, primarily focused on hidradenitis suppurativa (HS) and supporting psoriatic arthritis (PsA). The role builds trusted, long-term relationships with patient advocacy organizations, patients, and caregivers; develops understanding of unmet needs across the patient journey; and ensures patient perspectives inform disease education, patient support, and launch planning.

Working with Marketing, Medical Affairs, Patient Services, Market Access, and Clinical Development, the Director translates community insights into actionable initiatives while respecting advocacy organizations’ independence and maintaining appropriate boundaries between advocacy, market research, and promotional activities. The role also manages advocacy partnerships, budgets, vendors, and compliant engagement processes.

Requirements

• Bachelor’s degree required.
• At least 5 years of relevant experience in biotechnology, pharmaceuticals, patient advocacy organizations, or related healthcare settings, including substantial direct responsibility for patient advocacy strategy, partnerships, and engagement.
• Demonstrated success building trusted advocacy relationships, leading patient advisory boards and educational initiatives, and translating community insights into cross-functional action.
• Experience managing external partners and budgets.
• Strong relationship-building, listening, facilitation, and communication skills, including the ability to engage patients and caregivers respectfully and translate complex information into accessible education.
• Ability to synthesize patient and caregiver feedback into clear priorities, influence cross-functional decisions without direct authority, and balance strategic planning with hands-on execution in a lean, fast-paced environment.
• Sound judgment and working knowledge of ethical patient engagement, advocacy independence, patient privacy and consent, grants and sponsorship governance, and the distinction between advocacy and promotion.
• Strong project management, prioritization, and accountability.

Nice To Haves

• Advanced degree (MSc, MBA, PhD, PharmD, or MD).
• Emerging-biotech and prelaunch or launch experience.
• Experience in immunology, dermatology, rheumatology, or a related specialty or chronic disease area.
• Familiarity with HS or PsA patient communities.

Responsibilities

• Develop and execute an annual patient advocacy plan based on community priorities, unmet needs, and launch readiness.
• Monitor the advocacy landscape and identify opportunities to address gaps in disease awareness, education, and support.
• Build and sustain relationships with national and regional advocacy organizations, patient leaders, and caregivers.
• Map the patient journey with community input, identify barriers to diagnosis, access to care, and ongoing support, and develop shared initiatives that respect each organization’s mission and independence.
• Develop and deliver compliant, accessible disease-awareness and educational initiatives with advocacy partners.
• Represent the company at patient meetings and community events, apply health-literacy principles, and create opportunities for patients with varied experiences and care settings to contribute.
• Serve as Marketing’s patient advocacy lead and a resource across Medical Affairs, Patient Services, Market Access, and Clinical Development.
• Bring community perspectives into launch readiness, education, and support planning.
• Coordinate trial-awareness activities with Medical and Clinical colleagues while maintaining clear accountability and appropriate nonpromotional boundaries.
• Manage advocacy budgets, agencies, timelines, and deliverables.
• Coordinate sponsorships, grants, and partnership agreements through designated review and approval processes.
• Work with Legal, Compliance, Medical, and Regulatory on appropriate engagement, consent, privacy, transparency, and adverse-event reporting.

Benefits

• Opportunity to learn and grow alongside experienced professionals in a supportive and innovative biotech environment.
• Opportunity to contribute to projects with the potential to transform global healthcare.
• Flexibility and work-life balance.
• Career progression and the opportunity to take on more responsibilities as skills develop.

What This Job Offers

• Job Type: Full-time
• Career Level: Director