Director, Neuromuscular, US Patient Advocacy

Novartis • East Hanover, NJ

2d • $152,600 - $283,400

About The Position

The Director, Neuromuscular, US Patient Advocacy sets strategy and leads collaboration with relevant Neuromuscular patient communities (including but not limited to DMD, DM-1, FSHD) to understand unmet needs that inform business strategy, mobilize patients to seek the best care and reduce access barriers.

Requirements

• Bachelor’s degree required
• 12+ years of experience in patient advocacy or related discipline with a healthcare and/or pharmaceutical background, prior experience in neuromuscular and rare disease areas preferred
• 2+ years in industry patient advocacy role required
• Demonstrated ability to build trusting relationships with patient organizations professional associations and other stakeholders
• Strong commercial and launch experience

Nice To Haves

• Understanding of US policy, regulatory, compliance, and competitive landscape
• Leadership presence and ability to influence at senior management level and across diverse set of matrix cross-functional partners
• Strong business acumen, critical thinking and collaborative enterprise mindset
• Excellent written and verbal communication skills
• Excellent people & communication skills
• Ability to effectively analyze market data to inform strategy
• Ability to inspire and lead teams
• Ability to multi-task and manage complex issues into simple effective solutions
• Ability to operate within a dynamic & ambiguous environment

Responsibilities

• Build trusted, long-term relationships with patient organizations and communities in focused neuromuscular disease areas (including but not limited to DMD, DM-1, FSHD), centered on two-way communications and collaborations to advance shared priorities
• Partner with patient organizations to educate and mobilize patients to seek optimal care and elevate the voice of patients/caregivers among HCP, policymaker and payer audiences, as appropriate
• Develop and execute integrated patient advocacy strategies (including launches) aligned to critical business and corporate priorities based on deep understanding of the patient/carer experience and unmet needs and the competitive landscape
• Ensure patient/carer insights and implications for launch and growth brands are systematically embedded across Corporate Affairs work and with cross-functional partners
• Lead Patient Advocacy TA team, manage and develop talent
• Utilize Corporate Affairs function analytics and insights framework within scope of work
• Anticipate and manage risk to Novartis and brand reputation, shaping strategy and initiatives with business partners and senior leaders
• Model and encourage the responsible adoption of AI enabled tools to strengthen advocacy excellence (in planning and execution), efficiency, and insight generation
• Develop AI-enabled educational programs and resources that address unmet patient and caregiver needs and drive business objectives

Benefits

• health, life and disability benefits
• a 401(k) with company contribution and match
• a variety of other benefits
• generous time off package including vacation, personal days, holidays and other leaves

What This Job Offers

• Job Type: Full-time
• Career Level: Director