Associate Director, US Patient Advocacy

argenx

19d • $164,000 - $225,500 • Remote

About The Position

The Associate Director, US Patient Advocacy is a remote-based member of argenx’s US Patient Advocacy Team. The role serves as a primary point of contact for external Patient Advocacy Organization (PAO) partners and internal argenx teams, helping the company engage consistently as a partner of choice and integrate the patient voice throughout its work.

The position develops and maintains indication-level advocacy strategies, communicates those strategies to internal and external partners, brings patient perspectives into development milestones, and works with cross-functional teams to support patient communities for in-market indications. Coverage includes pipeline and in-market indications, including gMG and CIDP. The role involves substantial time in assigned geographies building PAO relationships and attending prioritized patient events, in person or virtually. Travel may be up to 50%, and some events occur outside standard business hours; a flexible schedule will accommodate evening and weekend work.

Requirements

• Bachelor’s degree required.
• 10 years of industry or related experience.
• Proven capability and success implementing innovative programs in rare disease and with minority and underserved patient communities.
• Proven track record setting and maintaining adherence to an advocacy strategy for an indication or Therapeutic Area.
• Veeva experience and proficiency required.
• Experience with rare disease patient interactions and compliance required.
• Willingness to travel up to 50% and attend events outside business hours, including evenings and weekends.
• Strong communication skills, including active listening, clear spoken and written communication, and effective presentation.
• Ability to understand internal stakeholders’ perspectives and work collaboratively with them.
• Passion for understanding and championing the needs of people living with rare diseases, their caregivers, and their communities.
• Desire and knowledge to integrate the patient voice into the end-to-end product lifecycle, including knowing when, where, and how to do so.

Nice To Haves

• Advanced degree.

Responsibilities

• Develop and implement patient advocacy strategies and engagement plans for disease therapeutic areas, aligned with corporate objectives and strategies.
• Balance and prioritize pipeline and in-market indications, including gMG and CIDP.
• Execute national and local patient advocacy engagement strategies for in-market indications in alignment with cross-functional teams, translating US and market strategies into actionable tactics and events.
• Build and manage relationships with US Patient Advocacy Organizations.
• Build understanding of patient needs through prioritized patient events, patient panels, and cross-functionally identified opportunities.
• Provide local support to the patient services team during patient onboarding.
• Represent argenx at external events and conferences to educate and engage patients, and empower other teams to do so when necessary.
• Define and measure business impact at local, regional, and national events.
• Maintain proficiency in disease states, Patient Experience, and product knowledge to support community needs.
• Generate and synthesize insights to inform local market engagement.
• Work cross-functionally across argenx’s ecosystem of support to identify patient advocacy needs and opportunities.
• Represent the community within the organization and Advocacy team for assigned pipeline and all in-market indications.
• Manage internal operations, including compliant management of events, PAO sponsorships, and budgeting.
• Build and own advocacy strategies for assigned indications from development through in-market, in collaboration with therapeutic-area Advocacy colleagues.
• Align activities and prioritization with strategy through frameworks, standardization, and ways of working.
• Spend time in assigned geographies building relationships with PAOs and attend prioritized patient events, including events outside standard business hours as needed.
• Travel up to 50% of the time.

Benefits

• Retirement savings plans.
• Health benefits.
• Other benefits subject to applicable plan terms and program guidelines.
• Eligible to participate in short-term and long-term incentive programs, subject to plan terms and applicable policies.

What This Job Offers

• Job Type: Full-time
• Career Level: Director