Associate Director, Patient & Professional Advocacy

Insmed Incorporated•NJ Corporate Headquarters, NJ

9d•$155,000 - $201,500•Remote

About The Position

At Insmed, every moment and every patient counts — and so does every person who joins in. As a global biopharmaceutical company dedicated to transforming the lives of patients with serious and rare diseases, you’ll be part of a community that prioritizes the human experience, celebrates curiosity, and values every person’s contributions to meaningful progress. That commitment has earned us recognition as Science magazine’s No. 1 Top Employer for five consecutive years, certification as a Great Place to Work® in the U.S., and a place on The Sunday Times Best Places to Work list in the UK. For patients, for each other, and for the future of science, we’re in. Are you? About the Role: We’re looking for an Associate Director, Patient Advocacy & Professional Engagement on the Patient Advocacy team to help us expand what’s possible for patients with serious diseases. Reporting to the Director, Patient Advocacy and Professional Engagement, you’ll play an instrumental role in building and leading patient advocacy and professional society engagements, supporting the overall program strategy. Your primary focus will be on cultivating strong relationships with patient communities, advocacy groups, professional societies and individual patients, to better understand their needs, experiences, and challenges. You will also be instrumental in providing the perspective as we design and execute our clinical development programs. You will work cross-functionally to integrate actionable insights from patients, patient communities and HCPs into our programs and decisions.

Requirements

Bachelors’s degree in life sciences, healthcare, public health or related fields
6+ years of experience in patient advocacy/engagement or related roles within the biotechnology, pharmaceutical, or healthcare industries.
Strong understanding of Pulmonary and Rare Lung diseases, with an ability to communicate complex scientific concepts to diverse audiences.
Strong track record of performance in developing and driving strategic projects, including managing budgets.
Excellent communication and interpersonal skills to engage with patients, advocacy groups, and internal stakeholders effectively.
Experience working across a matrixed team structure and prioritizing appropriately.
Demonstrated peer leadership experience and ability to inspire and motivate a matrixed team.
Deep empathy for patients and their families, with a passion for advocating on their behalf.
Knowledge of regulatory and ethical considerations related to patient advocacy and engagement.
Passionate about making a difference in the lives of patients with serious and rare disease.
Familiarity/experience with regulatory and pharmaceutical legal promotional review processes
Highly organized with a strong attention to detail, clarity, accuracy, and conciseness

Nice To Haves

Advanced degree preferred
Experience working in an early-stage and/or mid-cap sized company highly desired

Responsibilities

Be the bridge between patient organizations and patients, physician organizations and KOLs, and our organization, ensuring their perspectives influence our decision-making processes, clinical development strategies, and patient support initiatives, as well as support large-scale collaborative research and quality improvement projects with patient and professional associations aligned to internal business objectives and external strategic priorities.
Develop and execute a Patient & Professional Organization engagement strategy aligned to internal business needs and external community needs.
Collaborate and co-create with Patient & Professional Organizations to identify and implement innovative initiatives to empower patients to seek optimal and informed care.
Participate and support Patient Organization events, workshops, and conferences to promote awareness and foster patient community engagement.
Collaborate and co-create with Professional Medical Associations to identify and implement innovative initiatives intended to address the evolving medical science related to Ismed therapeutic areas, as directed.
Build and maintain a KOL strategy with the identified thought leaders in the assigned therapeutic/disease states.
Implement a systematic strategic framework to ensure patient experience is incorporated into all critical business decisions across the asset lifecycle
Engage with patient advocacy groups, foundations, and individual patients to understand their perspectives and needs as it related to Patient-Focused Drug Development
Establish and maintain strong relationships with key stakeholders in the patient community.
Collaborate with cross-functional teams to ensure patient perspective is internally understood and incorporated into company culture as well as ensure patient needs are considered at all stages of product development.
Represent the company in external forums and conferences related to patient advocacy.

Benefits

Comprehensive medical, dental, and vision coverage and mental health support
annual wellbeing reimbursement
access to our Employee Assistance Program (EAP)
Generous paid time off policies
fertility and family-forming benefits
caregiver support
flexible work schedules with purposeful in-person collaboration
401(k) plan with a competitive company match
annual equity awards
participation in our Employee Stock Purchase Plan (ESPP)
company-paid life and disability insurance
Company Learning Institute providing access to LinkedIn Learning, skill building workshops, leadership programs, mentorship connections, and networking opportunities
Employee resource groups
service and recognition programs
meaningful opportunities to connect, volunteer, and give back