Associate Director, Patient Marketing Strategy - Neuromuscular Disease
About The Position
Help shape the patient and caregiver experience in facioscapulohumeral muscular dystrophy (FSHD). As the Associate Director, Patient Marketing Strategy, you will develop and execute patient-focused marketing initiatives that support disease awareness, engagement, and launch readiness, helping translate patient, caregiver, and advocacy insights into meaningful educational and marketing programs. Working across Patient Services, Advocacy, Market Access, Medical Affairs, Customer Experience, and agency partners, you will play a key role in strengthening connections with the FSHD community, supporting treatment readiness, and building the capabilities and engagement infrastructure needed to support a successful launch and ongoing patient engagement. This position will be located in East Hanover, NJ or Cambridge, MA and will not have the ability to be located remotely. Please note that this role would not provide relocation, and only local candidates will be considered. This position will require up to 20% travel as defined by the business (domestic and/or international).
Requirements
- Bachelor’s degree in related field.
- Minimum of 5 years of experience in commercial marketing with either rare disease, specialty, neurology, neuromuscular, genetic testing, or complex chronic condition patient marketing experience.
- Minimum of 3 years of demonstrated experience of leveraging data, analytics, and customer insights to drive personalization at scale.
- Strong cross-functional leadership and ability to collaborate effectively with various stakeholders and teams including Product, Communications, Legal, Regulatory, Compliance and Global.
- Experience developing patient and caregiver disease-state education, unbranded and branded patient campaigns, support programs, or community engagement strategies.
- Demonstrated experience partnering with patient advocacy organizations, patient communities, caregivers, and external stakeholders in a compliant, patient-centered way.
- Experience with patient journey optimization, behavioral insight generation, segmentation, digital engagement, CRM, social/community listening, or omnichannel patient activation.
- Pre-launch and launch experience, including market shaping, patient activation, treatment-readiness planning, and cross-functional launch execution.
Nice To Haves
- Master of Science and/or MBA
- Multi-functional experience in pharmaceutical or healthcare
Responsibilities
- Partner with the Director, Marketing Strategy, to develop and execute an integrated patient and caregiver marketing strategy, including branded promotion, grounded in patient insights, behavioral science, advocacy partnerships, and launch-readiness priorities.
- Develop patient content, unbranded and branded campaigns, educational resources, community programs, support tools, and digital experiences that are insight-led, compliant, inclusive, and aligned to brand and disease-state strategy.
- Develop patient and caregiver disease-state education strategy to increase understanding of FSHD progression, diagnosis, genetic confirmation, care coordination, and the importance of staying connected to appropriate specialist care.
- Lead patient journey mapping, segmentation, behavioral strategy, and patient/caregiver jobs-to-be-done to identify priority barriers, moments of influence, and activation opportunities across the FSHD journey.
- Partner with advocacy organizations, patient communities, caregivers, and key community stakeholders to build trusted, compliant, and meaningful engagement that informs strategy and strengthens the FSHD ecosystem.
- Build patient activation, retention, and engagement programs that support patient re-engagement, informed conversations with healthcare providers, specialist connection, and treatment-readiness behaviors.
- Identify patient, caregiver, and system-level barriers to diagnosis, genetic confirmation, treatment adoption, access, and ongoing engagement; translate insights into clear action plans and measurable interventions.
- Collaborate closely with Patient Services, Patient Advocacy, Market Access, Medical Affairs, Communications, Legal, Regulatory, Compliance, Customer Experience, Insights & Analytics, Field, and agency partners to ensure coordinated execution.
- Define patient marketing priorities, budget needs, agency scope, launch milestones, KPIs, and optimization plans to measure belief shift, engagement, reactivation, diagnosis/genetic confirmation progress, and launch readiness.
Benefits
- health, life and disability benefits
- a 401(k) with company contribution and match
- a variety of other benefits
- a generous time off package including vacation, personal days, holidays and other leaves
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What This Job Offers
Job Type
Full-time
Career Level
Manager
