Regional Director, Rare Disease, Neurology (Great Lakes)
About The Position
At Ultragenyx, we are dedicated to leading the future of rare disease medicine by challenging the status quo and creating a new model that advances the field for patients. We focus on developing and delivering life-changing treatments through scientific innovation, rapid development, fair pricing, and a collaborative ecosystem. Our commitment extends to our people, fostering a supportive and inclusive environment for learning and growth. We aim to be an organization where employees are proud to work, and where they can have a meaningful impact, do the best work of their careers, and grow professionally and personally. The Regional Director (RD), Neurology, will lead a team of UltraCare Liaisons (UCLs) responsible for the successful launch, commercialization, and growth of Ultragenyx's Neurology portfolio. This leader will establish a high-performing team culture aligned with Ultragenyx values, focusing on patient impact, compliance, accountability, and execution excellence. The RD will drive regional business performance through strategic planning, coaching, customer engagement, and cross-functional collaboration, while supporting access and adoption within the rare neurology community. The Regional Director will report directly to the National Field Leader, Neurology. The territory for this role includes: Baltimore, Cleveland, Detroit, Louisville, Philadelphia West, Pittsburgh, and Richmond. This is a field-based role, generally interacting with third parties on behalf of Ultragenyx.
Requirements
- Bachelor's degree required; advanced degree preferred.
- 7+ years of pharmaceutical, biotechnology, rare disease, or specialty field leadership experience with a track record of commercial success.
- Rare disease experience required; rare neurology experience strongly preferred.
- Experience launching and/or commercializing highly specialized therapies, including ASO, gene therapy, or other advanced treatments, preferred.
- Demonstrated success building, coaching, and developing high-performing teams while promoting accountability, compliance, and talent growth.
- Strong understanding of rare disease patient journeys, diagnosis pathways, treatment administration, reimbursement, market access, and site-of-care considerations.
- Experience working with academic medical centers, Centers of Excellence, infusion networks, multidisciplinary care teams, and complex healthcare systems preferred.
- Proven ability to develop and execute strategic account plans and translate data-driven insights into actionable business strategies.
- Strong cross-functional leadership, collaboration, and influencing skills, with the ability to navigate ambiguity in a fast-paced environment.
- High ethical standards, strong business acumen
- Approximately 60–70% travel is required including overnight travel as needed
Nice To Haves
- Advanced degree preferred.
- Rare neurology experience strongly preferred.
- Experience launching and/or commercializing highly specialized therapies, including ASO, gene therapy, or other advanced treatments, preferred.
- Experience working with academic medical centers, Centers of Excellence, infusion networks, multidisciplinary care teams, and complex healthcare systems preferred.
Responsibilities
- Recruit, develop, coach, and retain a high-performing, diverse team of Neurology-focused commercial field professionals.
- Lead regional business planning and execution to achieve launch, growth, and performance objectives aligned with national commercial strategy.
- Drive launch readiness and post-launch execution, ensuring excellence in customer engagement, account planning, and team preparedness.
- Coach field team members through regular field visits, performance reviews, and development planning to strengthen capabilities and execution.
- Ensure team expertise in rare neurologic diseases, patient identification, treatment pathways, market access, reimbursement, and site-of-care dynamics.
- Build and maintain strategic relationships with healthcare providers, Centers of Excellence, integrated health systems, advocacy organizations, and other key stakeholders.
- Partner cross-functionally with Medical Affairs, Market Access, Patient Services, Marketing, Commercial Operations, and other stakeholders to optimize patient access and business outcomes.
- Analyze market trends, competitive activity, customer insights, and business performance data to inform regional strategy and decision-making.
- Manage regional resources, budgets, meetings, training initiatives, and commercial activities in compliance with company policies and industry regulations.
- Foster a patient-first, compliant, and collaborative culture while leading organizational change, innovation, and continuous improvement.
Benefits
- Generous vacation time and public holidays observed by the company
- Volunteer days
- Long term incentive and Employee stock purchase plans or equivalent offerings
- Employee wellbeing benefits
- Fitness reimbursement
- Tuition sponsoring
- Professional development plans
- Annual bonus
- Equity incentives
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What This Job Offers
Job Type
Full-time
Career Level
Manager
