We are seeking an experienced Healthcare Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally. We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community. The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels.
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Job Type
Full-time
Career Level
Senior
Education Level
No Education Listed