Duchenne Nurse Educator

Sarepta Therapeutics • Hartford, MA

8d • Hybrid

About The Position

The Duchenne Nurse Educator (DNE) works in a highly visible, dedicated team and supports health care providers, patients, and caregivers through education on Duchenne Muscular Dystrophy (DMD), the infusion process for Sarepta’s approved therapies, and Sarepta patient support programs. The DNE builds relationships with providers and families to support them throughout therapy and collaborates with cross-functional partners to help ensure ongoing compliance with therapy. The territory covers Maine, New Hampshire, Vermont, New York, Massachusetts, Rhode Island, Connecticut, and New Jersey.

The role may include special projects, including telephone triage support during rotating 24-hour on-call shifts. In this capacity, the DNE uses the nursing process to assess patient-safety needs, interpret medical information, and liaise between patient care teams and an experienced physician with Duchenne and precision medicine expertise. The DNE provides guidance when needed, follows organizational policies and procedures, documents calls according to established guidelines, including pharmacovigilance reporting, and directs teams to the appropriate customer service resource.

The position is hybrid. The employee is expected to work on site at a Sarepta facility in the United States and/or attend company-sponsored in-person events from time to time. Travel by ground and air within the assigned territory may be up to 60%.

Requirements

• Registered Nurse with a bachelor’s degree (BSN, BS, or BA) from an accredited school.
• At least 5 years of relevant experience.
• Exceptional presentation, verbal, and written communication skills.
• Ability to collaborate with internal and external cross-functional partners in a team-based environment.
• Comfort presenting in group and individual settings, live and virtually, with and without technology.
• Empathetic, friendly, and relatable approach, with effective communication skills.
• Comfort speaking with patients and families and providing education and support.
• Willingness to work as part of a team in a demanding environment.
• Commitment to continuous learning and seeking knowledge.
• Valid driver’s license in good standing.
• Flexibility to participate in rotating 24-hour, 7-day-per-week on-call coverage.
• Ability to travel, including by ground and air, up to 60% within the assigned territory and to meetings, training, and other programs as necessary.
• Must be authorized to work in the United States.

Nice To Haves

• Infusion, neuromuscular, pediatric neurology, or other specialty experience is preferred.
• Two or more years of pharmaceutical or biotechnology industry experience is preferred.
• Strong interest in educating on Duchenne disease and working with health care professionals to support patients and families.

Responsibilities

• Educate health care providers, infusion nurses, patients, and caregivers on DMD, Sarepta’s approved DMD therapies, and the infusion process.
• Serve as a recognized expert in DMD education, including genotype, deletions, and disease processes, and stay current on the DMD environment.
• Build relationships with health care providers, patients, and caregivers to support families throughout their therapy journey.
• Collaborate with internal and external cross-functional partners to support health care providers, patients, and families and promote ongoing therapy compliance.
• Present compliantly to individual and group audiences, in person and virtually, with or without technology.
• Conduct programs to increase disease-state awareness.
• Support infusion nurses and share best practices to improve the infusion experience for patients with DMD.
• Work with the SareptAssist team and specialty pharmacy to support transitions from infusion centers to home infusion for PMO therapies.
• Provide educational support to patients and families before and after therapy initiation.
• Attend advocacy meetings and represent Sarepta at industry conferences.
• Travel to training meetings, medical offices, home health agencies, and other programs as necessary.
• During assigned special projects, provide telephone triage for patient care teams seeking medical guidance after gene therapy treatment during rotating 24-hour on-call shifts.
• Interpret medical information to triage calls appropriately and communicate confidentially as a liaison between patient care teams and an experienced physician.
• Document calls according to established guidelines, including pharmacovigilance reporting, and direct patient care teams to the appropriate customer service center.
• Perform other related duties as required.

Benefits

• Competitive compensation and benefit package.
• Benefits and work-life resources supporting physical and emotional wellness, financial wellness, and caregivers.

What This Job Offers

• Job Type: Full-time
• Career Level: Mid Level