Senior Program Manager, Community Outreach

Brigham and Women's Hospital•Somerville, MA

30d•Hybrid

About The Position

Working in the Sean M. Healey & AMG Center for ALS, the Senior Program Manager, Community Engagement will engage in a dynamic role reporting to the Director, Care Innovation & Integration, and is responsible for providing compassionate support, meaningful connections, and resources to enhance the quality of life of individuals with ALS and their families and caregivers. This role involves close collaboration with caregivers, community partners, key stakeholders, and internal departments to enhance caregiver support services and promote community engagement for clinical care, research participation, and philanthropy. This role is designed to complement the work of the medical team by addressing the personal, emotional, and community-based needs that extend beyond clinical care. The Program Manager, Community Engagement will serve as a compassionate bridge between the clinic and the ALS community, providing non-clinical support that enhances quality of life for patients and families. This role will work to foster connections, belonging, and hope by offering a listening ear, developing educational resources, creating opportunities for community engagement, and collaborating with ALS organizations locally and globally. By amplifying patient and family voices as well as those from the internal clinic team, and sharing best practices across the ALS landscape, this position will ensure the clinic remains a source of comfort, innovation, and unity on a multitude of levels, while ensuring that no one walks the ALS journey alone.

Requirements

Bachelor's Degree Related Field of Study required, and Master's Degree Related Field of Study preferred
Program management experience 8-10+ years required
Team leadership experience 1-2 years required
Deep commitment to serving the ALS community with empathy, compassion, respect, and understanding.
Strong communication and interpersonal skills, with the ability to provide comfort and build trust with individuals and families during challenging times.
Proven experience in leadership, community building, program development, or patient/family support services.
Ability to collaborate effectively with medical teams, researchers, nonprofit organizations, and advocacy groups, locally, nationally, and internationally when needed.
Creative and resourceful in developing educational materials, engagement opportunities, and collaborative initiatives.

Responsibilities

Key member of the Healey Center strategic leadership team, assists with developing strategy, goals, and implementation of community engagement initiatives
Serve as a primary point of contact for ALS patients and families, offering guidance, empathy, and support in a non-clinical capacity.
Build and nurture a strong, connected community of ALS-impacted individuals and families, creating opportunities for peer-to-peer support and shared understanding.
Develop and distribute educational resources tailored to patients and their families to help each navigate the complexities of ALS with greater clarity, confidence, hope, and empowerment.
Develop, organize, and facilitate community programming, including seminars, workshops, meet-ups, and special events that foster education, connection, and hope.
Collaborate with ALS researchers, clinicians, and care providers to ensure families are aware of available resources, both within the clinic and across the broader ALS community.
Partner with ALS organizations locally and globally to foster unity, share best practices, and strengthen collaboration across the ALS landscape.
Leads program and engagement teams and coordinates and delegates community initiatives.
Represent the clinic at conferences and professional gatherings, sharing the clinic's initiatives while learning from others to incorporate new approaches and innovations.
Advocate on behalf of the ALS community as well as the clinic, amplifying patient and family voices while strengthening the clinic's role as both a source of comfort and a leader in engagement.
Utilize brand management skills to ensure the clinic is shown and represented cohesively across channels.
Partner with the development and leadership team to lead key events to bring the community together while raising critical funds.