About The Position

Headquartered in Carlsbad, California, and with offices in Boston, Massachusetts, and Dublin, Ireland, Ionis has been at work for more than three decades discovering medical breakthroughs that have redefined life for people with serious diseases. We’re pioneers in RNA-targeted medicines, and our platform continues to revolutionize drug discovery and transform lives for patients with unmet needs. With multiple marketed medicines and a leading pipeline in neurology, cardiology and select areas of high patient needs, we continue to drive innovation in RNA therapies in addition to advancing new approaches in gene editing to provide greater value to patients and are well positioned financially to deliver on our strategic goals. At Ionis, we pride ourselves on cultivating a challenging, motivating and rewarding environment that fosters innovation and scientific excellence. We know that our success is a direct result of the exceptional talents and dedication of our employees. With an unprecedented opportunity to change the course of human health, we look to add diverse individuals, skill sets and perspectives to our exceptional team. We continue to invest time, money and energy into making our onsite, hybrid and remote work environments a place where solid and lasting relationships are built and where our culture and employees can thrive. We’re building on our rich history, and we believe our greatest achievements are ahead of us. If you’re passionate about the opportunity to have meaningful impact on patients in need, we invite you to apply and join us. Experience and contribute to our unique culture while you develop and expand your career! ASSOCIATE DIRECTOR, PATIENT EDUCATION MANAGER - CALIFORNIA (CA, NV, HI) SUMMARY: The Patient Education Manager (PEM) is a field-based role that operates as part of the Patient Services and Support organization. The PEM role is a critical component of the patient services team. The PEM is responsible for using approved material on disease state, product education and patient service capabilities with patients and caregivers. Domestic travel required including phone-based and virtual meetings. To succeed, the candidate will have a sustained reputation for putting the patient first and a values-driven work style where integrity and service drive all behaviors, decisions, and actions. The PEM role is also responsible for engaging with Advocacy groups. PRODUCT: DAWNZERA is a prekallikrein-directed antisense oligonucleotide indicated for prophylaxis to prevent attacks of hereditary angioedema (HAE) in adult and pediatric patients 12 years of age and older.

Requirements

  • A minimum of a bachelor’s degree from an accredited University or College is required
  • A successful candidate will have an advanced scientific training or academic credentials establishing strong clinical acumen (Registered Nurse required)
  • Knowledge and experience with genetic conditions highly desirable
  • Demonstrated ability to work cross-functionally and cross-collaboratively with multiple internal and external stakeholders
  • At least 12 years of related experience, including supporting patients within Rare Disease
  • At least 2+ years field-based experience in biopharmaceutical industry preferred
  • Proven track record of delivering results that meet or exceed targeted objectives
  • Knowledge of insurance and payor landscape and US reimbursement process
  • Prior product launch experience preferred
  • Ability to work quickly and flexibly with resource constraints, exhibiting a results-driven mindset
  • Ability to work both independently and collaboratively with a diverse team
  • A curious learner who is eager to listen, has the courage to ask bold questions and influence via strong interpersonal and communication skills
  • Ability to travel up to 30% as necessary
  • Ability to manage ambiguity, navigate complexity, and be creative and solutions-oriented
  • Excellent written and verbal skills, fluency in Spanish is preferred but not required
  • A passion for patient care and exceptional attention to detail of policies and procedures to always ensure zero-exception compliant operations

Nice To Haves

  • Strong public speaking skills, with experience hosting patient-facing programs and delivering clear, confident presentations during internal meetings and calls.
  • Strong reimbursement and market access knowledge and the ability to educate and support patients throughout their treatment journey is preferred.
  • Prior product launch experience preferred
  • Excellent written and verbal skills, fluency in Spanish is preferred but not required

Responsibilities

  • Deliver disease state and product education regarding Ionis brand(s) and their approved indication(s) using approved training/education materials to support and empower patients/caregivers as they navigate the treatment journey
  • Educate account nurses and office staff, when requested, on the role and service model of the Patient Education Manager to support patients (coordinated with other field-based representatives)
  • Serve as a liaison to access teams and partners to address patient specific needs
  • Contributes to and engages with cross-functional team in a highly integrated way
  • Demonstrates commitment to the regional team by sharing perspectives, territory insight, and recommends strategies to integrate perspectives across patient education solutions
  • Responsible for delivery of approved education programs (in person and webinar) to patients, families, and caregivers
  • Participate in ongoing refinement of patient engagement strategy and educational materials to increase awareness and optimize service offerings
  • Respond to customer inquiries, provide appropriate education and support and triages to available resources
  • Meet documentation requirements to facilitate tracking of critical metrics
  • Complete all requisite training and ensure full compliance with all applicable corporate and industry policies
  • In collaboration with the Corporate Affairs teams, share advocacy insights from regional and local levels
  • Identify, develop, and execute a multidisciplinary team approach for the company/disease to help execute a successful launch

Benefits

  • Ionis offers an excellent benefits package!
  • Full Benefits Link: https://ionis.com/careers#:~:text=Highly competitive benefits
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