Chiesi Global Rare Diseases is a Chiesi Group’s business unit established in February 2020 and focused on research, development and commercialization of treatments and patient support services for rare and ultra-rare disorders, many of whom have limited or no treatments available. This unit is based in Boston, Massachusetts, with a strong synergy with the headquarters in Parma. Rare unit has a focus on research and product development for lysosomal storage diseases, rare hematology, ophthalmology disorders and rare immunodeficiencies. The unit is also a dedicated partner with global leaders in scientific research, patient advocacy and care. Discover more here . Who we are looking for This is what you will do The Global Medical VP of Real-World Evidence will be a visionary leader responsible for building and scaling our RWE function, shaping the strategy from the ground up. This role combines scientific rigor, digital innovation, and entrepreneurial drive to harness real-world data (RWD) for regulatory submissions, market access, and optimized patient outcomes, including enhancing healthcare professional (HCP) confidence in therapy adoption, improving patient acceptance and adherence through evidence of real-world effectiveness, and addressing unmet needs in diverse populations. Given the significant challenges in recruiting for classic randomized clinical trials in rare diseases and the heightened demand for RWE, the VP of RWE, strategically positioned within the Global Rare Disease Division, will lead the enterprise-wide RWE strategy across the Chiesi group to address this critical need. Based in Boston with hybrid flexibility, you will collaborate with R&D, market access, and digital technology teams, utilizing large datasets such as claims data, electronic health records (EHRs), and registries, and leveraging advanced analytics like natural language processing (NLP) to unlock actionable insights. As a global role, the candidate must be well-versed in navigating diverse geographies, datasets, and regulatory environments, ensuring RWE strategies are tailored to regional healthcare systems and data ecosystems. The Global VP of RWE will oversee worldwide responsibilities, leading initiatives that span multiple continents and regulatory landscapes, directly informing global healthcare policies and patient access to innovative therapies in rare diseases. This position requires navigating the complexity of managing multiple stakeholders without direct org chart authority, spanning across R&D, commercial, HEOR, and business units focused on rare diseases, while integrating with the AIR and CARE franchises to align on cross-portfolio needs and priorities across multiple geographies. Starting with a few direct reports, the candidate will have the opportunity to grow and expand the RWE team strategically, scaling operations to meet the evolving demands of our ambitious pipeline and international partnerships. This high-impact VP-level role will position the candidate at the forefront of biotech innovation, empowering you to drive transformative changes that accelerate drug development and market entry on a global scale, making it an ideal platform for visionary leaders to leave a long-lasting legacy in the industry. The VP will report directly to the Global Medical SVP of Rare Diseases and serve on the Global Rare Diseases Leadership Team, driving enterprise-wide RWE strategy. The VP will be involved in global RWE governance committees, shape C-suite decisions on data investments, and set the strategic vision for RWE integration across all therapeutic areas and geographies. This is a unique opportunity to create a transformative RWE program within a forward-thinking organization.