Denali Therapeuticsposted 24 days ago
Full-time • Senior
Remote • South San Francisco, CA
Professional, Scientific, and Technical Services

About the position

Denali Therapeutics is a biotechnology company dedicated to developing breakthrough therapies for neurodegenerative diseases through our deep commitment to degeneration biology and principles of translational medicine. Denali is seeking an experienced and collaborative Senior Manager, Patient Access and Experience to serve as a dedicated support resource for patients, caregivers, and healthcare providers across the care continuum. This is a critical role for ensuring a seamless patient experience and will balance the daily needs for patient/customer engagement with supporting program operations.

Responsibilities

  • Serve as the primary point of contact for an ultra rare disease patient support program within their assigned region for patients, families and healthcare providers.
  • Develop and maintain long-term relationships with patients/caregivers and their healthcare providers to provide support for starting and adhering to therapy.
  • Work closely with patients/caregivers, healthcare providers, treatment centers, specialty pharmacies and payers to navigate patient access and address barriers.
  • Connect patients and caregivers with appropriate financial assistance programs and resources throughout their care journey.
  • Maintain a deep understanding of Hunter syndrome and MPS therapy area, patient and community needs, available support resources and regional access dynamics.
  • Ensure the program operates seamlessly through regular monitoring, team alignment, and cross-functional communication.
  • Assist in developing and maintaining key elements of operations (e.g. process, technology, compliance).
  • Promote a culture of continuous improvement through regular feedback, process enhancements, and program improvements.
  • Act as a subject matter expert for cross-functional teams on access process, navigation of health care systems, insurance plans, and patient support offerings.

Requirements

  • Bachelor's degree, life sciences preferred.
  • Minimum of 5+ years of experience supporting patients in pharma/healthcare, case management, social work or related field.
  • At least 2+ years in a patient support program, integrated health care provider or managed care setting desired.
  • Preferred experience in rare disease, pediatrics and complex therapies.
  • Ability to effectively engage with patients, caregivers and healthcare professionals.
  • Skilled at effectively educating patients, caregivers, and healthcare professionals on complex topics.
  • Proven expertise and experience with government and private payers; addressing access/reimbursement challenges.
  • Demonstrated success working in a complex matrix working independently and cooperatively within teams.
  • Strong problem-solving, communication and collaboration skills.

Nice-to-haves

  • Bilingual (Spanish-speaking) preferred.
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