Manager, Patient Advocacy

Soleno Therapeutics, Inc.

About The Position

The Manager, Patient Advocacy will provide administrative, operational, and programmatic support to Soleno’s patient advocacy function. The individual in this position will manage logistics for advocacy initiatives, maintain databases and communications channels, and ensure the smooth execution of patient-facing programs. This Manager will serve as the organizational backbone of advocacy efforts, supporting both Soleno internal teams and external patient communities.

Requirements

Bachelor’s degree in life sciences, communications, public health, or related field
3–7 years of experience in patient advocacy, patient engagement, community relations, or external affairs in the pharmaceutical/biotech or rare disease space
Proven track record working with rare disease patient communities and advocacy organizations
Strong interpersonal and relationship-building skills
Excellent written and verbal communication skills; ability to simplify complex scientific/medical content into patient-friendly terms
Analytical mindset — able to use professional expertise to solve moderately complex issues
Project management skills; organized, able to drive multiple initiatives concurrently
Emotional intelligence, empathy, and sensitivity to patient experiences
Willingness to travel to events when needed (i.e., conferences, advocacy events) - Travel up to 30%

Nice To Haves

Understanding of regulatory and compliance constraints around patient engagement
Experience using Veeva PromoMats
Spanish (or other language) fluency to support diverse patient populations
Master’s degree (public health, communications, or related)

Responsibilities

Program Administration and Coordination
Organize and track patient advocacy initiatives
Schedule and coordinate patient advisory boards, advocacy meetings, webinars, and family events
Maintain calendars, project trackers, and action item lists across advocacy projects
Support administrative needs and in-person Patient Advocacy events, as needed, and in coordination with Senior Director, Patient Advocacy and Government Affairs
Patient Advocacy Engagement
Represent Soleno at patient-facing events, conferences, etc. as needed
Communications and Documentation
Draft and maintain patient-friendly resources, newsletters, FAQs, and updates
Ensure consistency and compliance of all external communications in compliance with regulatory and legal standards
Prepare meeting minutes, summaries, and follow-up reports from Patient Advocacy engagements
Database and Record Management
Maintain databases of patient advocacy organizations, key contacts, and stakeholder mapping/interactions
Track community inquiries and feedback; log and escalate as appropriate
Compile data for internal dashboards, slide decks, and leadership updates
Budget and Vendor Support
Support PA/GA invoices, track expenses, and support budget reconciliation for advocacy activities, including sponsorship and compliance activities
Support activities with external vendors (e.g., event planners, design agencies, translation services, etc.)
Support contracts and compliance documentation for patient-related activities
Cross-Functional Liaison
Provide administrative support for collaboration between Patient Advocacy and Clinical Development, Medical Affairs, and Commercial
Coordinate review cycles for patient education materials and advocacy content
Assist with compliance submissions and documentation for patient engagement initiatives
Collaborate with internal teams to ensure patient input is meaningfully considered across the product lifecycle
Support internal training for company employees (clinical, commercial, field teams) on patient perspectives, disease burden, and empathy
Monitoring and Reporting
Track key performance indicators (KPIs) for advocacy programs (i.e., attendance, outreach metrics, attendee satisfaction)
Generate regular internal reports summarizing activities, insights, and impact (i.e., PA event summaries, etc.)
Maintain compliance records in line with company policies and industry standards
Other
Other administrative support of Patient Advocacy function as needed