The Global Lead of Patient Advocacy for Rare Diseases leads the development and execution of global patient advocacy strategies across the Rare Diseases franchise as part of an integrated corporate affairs approach. As a newly created role within a new organization currently being built, it plays a pivotal part in shaping the future direction of our patient advocacy model. This role serves as the bridge between Ipsen and the patient community, ensuring that patient perspectives inform business decision-making. This role is responsible for building trusted, long-term relationships with global and regional advocacy organizations and drives global initiatives that improve access, awareness, and patient outcomes both globally and locally. It partners cross-functionally and with in-country teams to ensure Ipsen is recognized as a transparent, responsive and trusted partner to the community.