Director, Patient Advocacy and Engagement

Alnylam Pharmaceuticals • Texas, AL

367d

About The Position

The Director, Patient Advocacy, US Medical TTR will play a critical role in driving patient-centric strategies and strengthening relationships with patient advocacy organizations across the US. Reporting to the Sr. Director, US Patient Advocacy TTR, the role will ensure alignment between patient advocacy efforts in the western half of the US and the broader US Medical Affairs strategy. The role will require a dynamic leader with strong interpersonal skills and a deep understanding of rare diseases, patient advocacy, and cross-functional collaboration.

Requirements

• Advanced degree in life sciences, public health, or a related field preferred (PhD, PharmD, MD, or MBA a plus).
• Solid experience in biotech and pharmaceutical industry.
• 8+ years of experience in patient advocacy, preferably in the biopharmaceutical industry.
• Proven expertise in rare diseases or conditions relevant to TTR is strongly preferred. Cardiac disease experience would be welcomed.
• Experience leading high-impact patient engagement programs at the national or regional level.

Nice To Haves

• Exceptional relationship-building skills with the ability to influence and collaborate across internal and external stakeholders.
• Strong understanding of the patient advocacy landscape, particularly in rare diseases.
• Strategic mindset with the ability to translate complex strategies into actionable plans.
• Proven ability to manage budgets and thrive within compliance operations frameworks.
• Excellent communication, presentation, and organizational skills.

Responsibilities

• Develop and execute the US patient advocacy strategy for the TTR (transthyretin-mediated) portfolio, ensuring alignment with the regional and global medical strategy.
• Serve as a member of the US Medical LT, contributing to strategic planning and decision-making processes.
• Partner with internal stakeholders, including Medical Affairs, Commercial, Market Access, and Public Affairs teams, to ensure a unified approach to patient advocacy efforts.
• Develop strategic collaborations between internal and external stakeholders in line with mutual goals to enhance care for patients.
• Enable patient input and engagement into regulatory and market access submissions.
• Support Alnylam's patient-focused culture collaborating closely with legal, compliance, and data privacy colleagues to ensure strict adherence to local codes and company policies.
• Serve as the primary point of contact for national, regional, and local patient advocacy groups, fostering trusted relationships that support mutual goals.
• Identify and address unmet patient needs by facilitating programs, initiatives, and collaborations that enhance disease awareness, patient education, and access to treatment.
• Develop initiatives to enhance disease awareness and improve time to diagnosis, as well as educate the patient community so that they are empowered to actively engage with their healthcare provider in the management of their disease.
• Represent the organization at patient advocacy events, including conferences, meetings, and community forums, to strengthen external relationships.
• Collaborate with regional medical and commercial colleagues to ensure patient advocacy activities are fully aligned with the broader regional strategy for TTR-related diseases.
• Lead the implementation of advocacy programs that are culturally and regionally appropriate, ensuring a positive impact at the national and local levels.
• Work closely with Commercial teams to ensure patient-centricity is integrated into brand and market access strategies.
• Partner with Medical Science Liaisons (MSLs) and other field teams to gather insights and facilitate interactions between patient advocacy groups and key stakeholders.
• Collaborate with the Public Affairs team to align advocacy initiatives with policy and communication strategies.
• Enhance understanding of the patient, caregiver, and associated communities across the Alnylam stakeholders to support strategic decision making that reflects the needs of the community.
• Lead the development of patient education materials, advocacy resources, and engagement plans in partnership with internal and external stakeholders.
• Monitor and evaluate the impact of patient advocacy initiatives, ensuring continuous improvement and alignment with organizational goals.
• Ensure all patient advocacy activities comply with regulatory, legal, and ethical standards.
• Serve as a trusted advisor on patient advocacy-related matters, providing guidance to internal teams on compliance best practices.

What This Job Offers

• Job Type: Full-time
• Career Level: Director
• Industry: Chemical Manufacturing
• Education Level: Master's degree
• Number of Employees: 1,001-5,000 employees