Clinical Research Nurse Coordinator - Neurology (Huntington Disease)

University of Kansas Medical CenterKansas City, KS

About The Position

The Clinical Research Nurse Coordinator in the Department of Neurology works closely with various clinical staff members and researchers of the University of Kansas Health System (TUKHS) , KU Medical Center (KUMC) and Huntington Disease (HD) Clinic to identify potential study participants and to provide care for people with HD and their families in the HD Clinic. This position works under the supervision of a faculty neurologist, primarily Richard Dubinsky, MD, MPH, director of the Huntington Disease Society of America (HDSA) Center of Excellence and of the HD Clinic.

Requirements

  • Licensed Practical Nurse (LPN) or Registered Nurse (RN) license.
  • Two (2) years of relevant experience in adult clinical research and or adult clinical neurology.

Nice To Haves

  • Master’s Degree in neuroscience, research, social work, or patient care field.
  • 5 Years of relevant experience in adult clinical research and or adult clinical neurology.

Responsibilities

  • Provide nursing care to research participants, including assessments, monitoring, and documentation, following study protocols, physician orders, and nursing scope of practice.
  • Recruit, screen, obtain consent and enroll, from identified Huntington's Disease participants.
  • Conduct study visits and procedures per protocol.
  • Assess and monitor participant status, providing clinical support, and reporting changes.
  • Recognize and report adverse events and serious adverse events in accordance with protocol, regulatory requirements, and institutional policy.
  • Coordinate study activities with clinical staff and researchers, provide training on research protocols, and collaborate with colleagues to align research and clinical operations.
  • Maintain, complete, and store all study documentation and data, including electronic and paper records, consent forms, and case report forms, in accordance with protocol and regulatory requirements.
  • Ensure compliance with IRB and regulatory requirements, identify and resolve obstacles in the consent process, and integrate participant consent efficiently into clinical workflows.
  • Oversee post-award grant and contract administration, including processing purchase orders, preparing invoices to sponsors, tracking expenditures, reviewing award budgets with investigators, and ensuring financial and compliance alignment.
  • Promote and coordinate clinical research initiatives for people with Huntington's Disease at TUKHS, ensuring protocol adherence and integration with clinical care.

Benefits

  • Coverage begins on day one for health, dental, and vision insurance and includes health expense accounts with generous employer contributions if the employee participates in a qualifying health plan.
  • Employer-paid life insurance, long-term disability insurance, and various additional voluntary insurance plans are available.
  • Paid time off, including vacation and sick, begins accruing upon hire, plus ten paid holidays.
  • One paid discretionary day is available after six months of employment, and paid time off for bereavement, jury duty, military service, and parental leave is available after 12 months of employment.
  • A retirement program with a generous employer contribution and additional voluntary retirement programs (457 or 403b) are available.
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