Access Manager - Rare Diseases

Alivia Health

17d

About The Position

The Access Manager Rare Diseases serves as the main liaison between the specialty pharmacy, medical offices, health plans, manufacturing companies, and internal teams, ensuring effective coordination of all processes related to rare disease therapies. This role aims to optimize access and management of these treatments and strengthen the pharmacy team's capabilities through continuous education and training on the processes, workflows, and requirements associated with these types of diseases and therapies. This role will provide appropriate patient education and support site of care as they navigate non-clinical barriers, along with reimbursement education, disease state and product education, advocacy and support for individuals living with rare diseases and their loved ones/caregivers.

Requirements

Bachelor’s Degree from a four (4) year accredited program including but not limited to the following specialization
Areas: Healthcare Administration, Natural Sciences, Business Administration, Pharm D or related areas.
5+ years’ business experience in the healthcare or biotech industry with at least 3 years field-based experience in account management, sales, and/or field reimbursement within the specialized pharmacy industry, limited drug distribution (orphan drugs) or pharmaceutical products.
Excellent written and oral communication skills in English and Spanish
Strong networking skills and proven exposure to the P.R. healthcare industry
Prior experience dealing with internal and external stakeholders to ensure a multidisciplinary approach for the introduction and support of new therapies focused on rare diseases.
PC proficient in MS office suite (Word, Excel, outlook, Ppoint) exposure to case management. CRM systems is highly desirable

Nice To Haves

Rare disease experience is preferred.

Responsibilities

Act as the central point of contact between the pharmacy, medical offices, health plans, and manufacturing companies.
Play the role of patient advocate in cross functional meetings with internal partners (Case Manager, Account Executive, Market Access & Reimbursement to build and maintain accurate case plans for patients (e.g., case histories, insurance, ongoing coverage needs, treatment plan changes, etc.)
Oversee comprehensive case management, ensuring proper coordination between prescription, authorization, and dispensing of therapies.
Monitor trends and processes to optimize services and access to these drugs.
Maintain constant communication with medical offices to coordinate clinical documentation, resolve issues, and ensure continuity of treatment if necessary.
Educate and support the specialty pharmacy team by sharing information on processes, access criteria, health plan policies, and specific requirements of rare disease programs.
Coordinate with internal teams (access, clinical pharmacists, patient services, logistics, and compliance) to ensure efficiency and consistency in processes.
Participate in the implementation of new therapies or programs within the rare disease portfolio, ensuring proper operational integration.
Analyze performance metrics (response times, adherence, compliance) and propose improvements.
Comply with applicable regulations and internal policies related to the management of specialized and orphan drugs.
Coordinate with manufacturing companies to ensure alignment in processes, reporting, compliance with indicators, and execution of support programs.
Provide education and training to the pharmacy team on specialized therapies, management protocols, operational workflows, and requirements of each manufacturer's programs.
Develop activities with the goal of achieving greater openness and understanding of rare disease
Monitor performance indicators (adherence, TATs, SLA compliance) and generate reports for management and/or the manufacturing company.
Participate in audits, process reviews, and update meetings with the involved parties.
Ensure that all access activities comply with HIPAA, payer regulations, manufacturer program requirements, and pharmacy policies.